brunob
Status: There will come a time when you believe all is finished. That, is just the beginning.
Mood:
Horrible
Offline
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it just dawned on me today why im sooo tired. they gave me extra steroids with the infusion and then i was running around like i could take on the world and yesterday that all changed.......i didnt...
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well i had the first infusion of rituximab yesterday....only a tiny glitch, a slight allergic reaction. i had an itchy throat after they increased the dose the first time so i had to take a second...
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Well it is a cold wintery day, we had snow this week and everything is cleared off and out. I think this is the most snow we have had in years. I dont mind it at all, but then I dont have to clean it...
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well it has been almost a week now on the O2...Ifeel so much better with it but it is a hassle. i dont know how i was coping before this, even now wheni take it off to dress or something i get so...
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Well here I sit in the recliner staring out the rainstreaked window contemplating the new year to come.I havent been journalling much lately.....havent had the strength. I have my third chest cold in...
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well I seem to be over the worst of the chest infection, the coughing and plegm are over for the most part. I have a bit more energy but the lung capacity has not come back to were it was before. I...
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i picked up a cold last week and have been having an awful time. my chest is full, but at least its moving, it seems to have climbed up into my head last night. Had a terrible morning, nausea and...
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After much soul searching and meditating, I think I am at the place of acceptance. What makes me think I am anymore special than the next person in regards to my longevity, the fear was getting to me...
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Well the last few days have been a little better but.....I have to admit I am scared. I am so short of breath with any exertion, I think he is going to recommend oxygen if this doesnt improve with...
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Well I am back and on a prednisone burst and taper.....yay (not)I feel so bad that I am hoping that it works. I phoned his office on monday and didn't hear anything back, so I found his email address...
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I had an okay day yesterday. i met a friend for coffee, went to the bank and managed to get the dishes done. we had our motorcycle club meeting last night, so dinner out....I felt pretty good. I woke...
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Hubby and i went out to dinner last night with some friends.....a birthday dinner, was nice but i felt myself disconnecting from the conversations.....it all seemed pointless. Not the best attitude...
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another day in hell.....i haven't felt like this since before I was dx. I made it to the couch today and that's as far as I went....I even upped my prednisone to 15mg.... that will give you an idea...
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went in for the test results and everything is fine, except the acid reflux or whatever it is has not gone away. So now they want to send me for a scope to see what is going on in my...
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well what a lousy start to the day......got a call from the rheumy's office, i was not approved for the funding for the new med.....so I guess the next step will be to go to Toronto and meet with the...
dd