enough already
another day in hell.....i haven't felt like this since before I was dx. I made it to the couch today and that's as far as I went....I even upped my prednisone to 15mg.... that will give you an idea of how bad i feel.
The doctors appointment didn't resolve anything it was kind of pointless. I don't mind seeing the resident but I would still like to be able to speak to my doc as well.....I mentioned to the resident about not getting the funding for the rituximab and that my next step was the transplant assessment......he then says to me what organ are they thinking of transplanting???? Hello... did you not just listen to my lungs and have the med student come in and listen to my lungs.....
I keep trying to find an upside in all this but I am having trouble seeing the silver lining. I thought I had made the decision to accept everything as it happened and deal with it, but this just seems relentless.
I'm even frustrated with the acupuncture right now.....I think he has forgotten what condition I have and how all encompassing it is. After he did the needles in my knees on Monday he did some massage on them....and it hurt alot, and now I can't sleep on my side with my knees together without a pillow.....they feel so bruised, no marks but they feel like they should. And I haven't heard anything from my homeopath. She said she was going to work up a new regime for me and would contact me after I got back from my trip.....I've been home for a month now and no word. I know i can call her and I'm being childish, but I guess I just want someone to take care of me. This is one of those moments when you want a mom to take care of you and make everything okay
I'm just feeling sorry for myself because I'm lonely and bored with hubby being gone. He'll be back on Friday and my friends have been keeping me somewhat busy......I've even screened some calls and not answered when they called....and I feel bad for it but I just wasn't up to putting on the I'm okay voice and pretending it's all good.....don't have the energy.
I have another acupuncture appointment tomorrow and I'm supposed to go and see a play tomorrow night....I hope I can suck it up enough to go....already paid for the ticket.....
enough mopeing for now.......
The doctors appointment didn't resolve anything it was kind of pointless. I don't mind seeing the resident but I would still like to be able to speak to my doc as well.....I mentioned to the resident about not getting the funding for the rituximab and that my next step was the transplant assessment......he then says to me what organ are they thinking of transplanting???? Hello... did you not just listen to my lungs and have the med student come in and listen to my lungs.....
I keep trying to find an upside in all this but I am having trouble seeing the silver lining. I thought I had made the decision to accept everything as it happened and deal with it, but this just seems relentless.
I'm even frustrated with the acupuncture right now.....I think he has forgotten what condition I have and how all encompassing it is. After he did the needles in my knees on Monday he did some massage on them....and it hurt alot, and now I can't sleep on my side with my knees together without a pillow.....they feel so bruised, no marks but they feel like they should. And I haven't heard anything from my homeopath. She said she was going to work up a new regime for me and would contact me after I got back from my trip.....I've been home for a month now and no word. I know i can call her and I'm being childish, but I guess I just want someone to take care of me. This is one of those moments when you want a mom to take care of you and make everything okay
I'm just feeling sorry for myself because I'm lonely and bored with hubby being gone. He'll be back on Friday and my friends have been keeping me somewhat busy......I've even screened some calls and not answered when they called....and I feel bad for it but I just wasn't up to putting on the I'm okay voice and pretending it's all good.....don't have the energy.
I have another acupuncture appointment tomorrow and I'm supposed to go and see a play tomorrow night....I hope I can suck it up enough to go....already paid for the ticket.....
enough mopeing for now.......
Replies
Hi...I\'m sorry to hear you are feeling so unwell. Some days ARE better than others.
Sounds like your trip to the doctor was a waste of time,,,,,I know it isn;\'t easy to keep up a facade of \"I\'m OK\" when you don\'t feel OK. I feel for you.............I hope you go to the play and enjoy it...
I often have to remind my kinesiologist what things we have done in the past. I know he keeps records, but some stuff just gets forgotten in the mass of patients. Let him know what your plans for the evening are, he may choose his treatment to boost you through an enjoyable evening. Good news, my kinesiologist/chiropractor is now a vendor for the VA. I can see him 6 times per year and the VA pays. I\'m excited. Enjoy your day.
Oh dear. Don\'t you just want to strangle some doc\'s? What transplant? Jeesh. Makes you wonder how some got in medical school, the same thing happens to me all the time. They always try to give me med\'s that MG\'ers cannot have. I remind them and they look at the chart. My rheumy and his little computer are the best, he misses nothing. Makes me wonder why they all haven\'t switched to the new technology.
I screen the phone calls also and you have every right when you don\'t feel well. People always ask how you are feeling, then they don\'t even let you finish. Sometimes it is too much to deal with on top of everything else. I\'m glad that you rested, we have to when we feel that way.
The sore knee, my back and neck is still sore but it is a good kind of sore. I know that may make no sense, but you can tell that it is healing. Not all practitioners are a good match. I hit the jackpot with mine. I want you to get that all over good feeling. Is he doing a mixture of pain and system treatments? Does he ask you a lot of questions at each visit? Or just get to work? Maybe it is too early in your treatment to get the bliss feeling.
I hope you feel better and take this opportunity to rest. Sending loving and positive energy your way.
Love, Peace and Courage,
Kim
I hate it when days like this turn into weeks like this. I hope you are feeling better. The husband should be home now. Sorry about the idiot doctor stand in.