follow up with family doc
went in for the test results and everything is fine, except the acid reflux or whatever it is has not gone away. So now they want to send me for a scope to see what is going on in my stomach.....yippy!!!!! (note the sarcasm)
Hubby is still off deer hunting and I am bored out of my mind. Went to the film group last night and saw the movie Max Manus. it was okay.....it was a war movie, not my favourite and subtitled too. It was based on a true story of the Norwegian risitance during WW2.
I guess I am letting feeling bad get to me.....this has been unrelenting, it has improved some since I started the nexium but still its at about a 5. I spoke to the clinic for the rituximab and they are going to look into other options for funding and I can always approach my MP about other help. I also thought about contacting the company and seeing if they would fund it for the research results, because this would be an off label use that they have had good results with. I'd be willing to release my records for that......anything to delay a transplant.
I've been wondering if this is maybe a flare.....who knows, but I really don't want to deal with something else right now. there should be some cosmic law that you only have to deal with so many things at one time......i'm not complaining too much. because I know I have it easy compared to others. I don't have to work and my husband is supportive and i have some good friends and my virtual family here.
Okay I'm done now....LOL
Hubby is still off deer hunting and I am bored out of my mind. Went to the film group last night and saw the movie Max Manus. it was okay.....it was a war movie, not my favourite and subtitled too. It was based on a true story of the Norwegian risitance during WW2.
I guess I am letting feeling bad get to me.....this has been unrelenting, it has improved some since I started the nexium but still its at about a 5. I spoke to the clinic for the rituximab and they are going to look into other options for funding and I can always approach my MP about other help. I also thought about contacting the company and seeing if they would fund it for the research results, because this would be an off label use that they have had good results with. I'd be willing to release my records for that......anything to delay a transplant.
I've been wondering if this is maybe a flare.....who knows, but I really don't want to deal with something else right now. there should be some cosmic law that you only have to deal with so many things at one time......i'm not complaining too much. because I know I have it easy compared to others. I don't have to work and my husband is supportive and i have some good friends and my virtual family here.
Okay I'm done now....LOL
Replies
Yeah, I know what you mean about it could be worse. Plus, my home support is pets and friends that drop in. I have one friend that will even do my dishes for me. However, no other human lives in this house. It does have some beni\'s though. I don\'t have to get up if I don\'t want to and no one will question it.
You are still on the prednisone, right? It took me 2 months after stopping prednisone to get relief from the reflux. They wanted to scope me also and I told them to wait until next year. I suspected it would clear up and I was just tired of all the medical stuff. I\'m going to have to schedule a vacation just to get a week off. lol
How can we not let feeling bad get to us? For two weeks I was miserable and all the happy positive thoughts were not entering my mind. You have every right to vent. Get it all out, curse the heavens, throw a fit and you may be surprised how you feel. We used to start our positive psychology class with a good scream, the whole class. We got some complaints but the professor had tenure so we continued with the daily scream. Seems strange to have that in a class labeled positive psy, but he said that you have to release the bad to let the good pour in. I save this for when I\'m driving and the radio is up. If I did that at home I\'d probably have all the neighbors at my door. lol
We are playing the lottery this week, per my statement on one of my journals. If we win, you will have your medicine, that\'s a promise. Better chances of winning the lottery than winning with insurance. lol Sorry trying to get a smile or chuckle.
You have amazing courage and a wonderful outlook. I\'m going to check my network and my honor society if we have any members in Canada I want to contact them about your situation. Would you mind? I know we could get you some help here, just not sure what is available where you live. I would also like to contact my old medical sociology professor. An amazing man that has written several books on the subject. The helper me coming out, sorry.
As of now I will wish you the best. Send you all the loving positive energy I can. Love ya, Kim