bad news

well what a lousy start to the day......got a call from the rheumy's office, i was not approved for the funding for the new med.....so I guess the next step will be to go to Toronto and meet with the transplant assessment team, probably in the new year.
The last couple of days have been up and down, the reflux feels a bit better with the nexium (another med not covered for me) but I must be in a flare. My skin actually hurts.....it hurts to touch and to shower and I have been having awful headaches, I think the headache is partly from the cupping, I think I am going to ask him to leave that off for awhile. I am supposed to go in today but I think I am going to reschedule for Monday and just take it easy for a few days.
My daughter is going to get the same tattoo that I just got, she is such a sweetheart. We have our tickets for the play....so I have to rest up for that, we are going on the 17th to the matinee. I really hope I am feeling better by then.
Did my bloodwork and chest xray, so back to the family doc on tuesday for the results.....maybe I should have waited to get the flu shot, maybe that is making me flare too????
I think I am going to hold the couch down for most of the day,, have to get some laundry done for Hubby, he is leaving for deer camp on sunday, and we have a birthday party to go to tonight, but we don't have to stay long

Replies

deleted_user
deleted_user

I\'m so sorry you got bad news from the Rheumy. What med were you going to go on? I think it\'s so nice for your daughter to get the same tatoo as you. That\'s called bonding. lol
Have fun holding down the couch this weekend. Sure sounds like a great idea. Maybe I\'ll do the same.
Hang in there girl.
Hugs and love Nance
brunob
brunob

hey Nance, they wanted to try rituximab it is one of the bioligic RA drugs, this would have been an off label use and it was turned down....so now I wait and see. Enjoy the couch if you get a chance
oxfordns
oxfordns

Keep your chin up...nothing but best wishes for you!!!!
deleted_user
deleted_user

It gets tiring having to jump through all those hoops, doesn\'t it? I hope that you feel better for the play. What are you seeing? God Bless. Love, Jean
deleted_user
deleted_user

I\'m sorry for your news. I did a couch day yesterday also plus a little laundry, weird. I\'m hoping that you and I both catch a wave of positive things to come. You know, I have been seeing my acupuncturist for over 2 years now and have never been cupped. She believes in more pins and more time. I don\'t think I would like the cupping, but I have never had it so I shouldn\'t have an opinion. lol A good movie for couch time is \"Date Night.\" Those two are pretty funny together. We are going to rent some movies today. You can do that on your ipad, can\'t you? Download movies? Hubby was saying that I needed one, but we are going to look at wifi for my desktop. I cannot take the slow dial up anymore.

Just a thought, do you have any algae? It helps with the headaches by rehydrating the whole system. I\'m getting back on the stem enhance-a type of algae. It\'s expensive so I quit taking it, but with my last test results I would say that my body needs it. It is supposed to work by producing your own stem cells, all I know is when I take it I get energy and my head clears. It\'s a neat sensation.

Rest and feel better. Love ya, Kim
SleepyT
SleepyT

What transplant are you assessing?
I hope you start feeling better soon. I am flaring as well. Could be the sudden onset of winter?
Enjoy your play, that\'s awesome that your daughter is getting the same tattoo.
Take good care,
Teisha
brunob
brunob

It would be a lung transplant. Still trying to get the funding tho.....
deleted_user
deleted_user

Sorry to hear that! That is awesome you and your daughter are so close! I wish my mother and I were.. Have fun at the matinee and enjoy every minute, even if it is on the couch!
TDScarlett
TDScarlett

You are in my thoughts and prayers... take care - TD
TDScarlett
TDScarlett

You are in my thoughts and prayers... take care - TD
TDScarlett
TDScarlett

You are in my thoughts and prayers... take care - TD
TDScarlett
TDScarlett

Oops, not sure what I did to make this repeat... but it just represents how much I am thinking of you!!! XOXO - Teresa
deleted_user
deleted_user

I wish there was a better way than transplant. Keep smilin\' it is contagious even to the one who starts it. :-)