a wintery sunday
Well it is a cold wintery day, we had snow this week and everything is cleared off and out. I think this is the most snow we have had in years. I dont mind it at all, but then I dont have to clean it or drive much in it.
i havent journalled much lately, just out of shear laziness. That is the only thing i dont like about the ipad.....i cant write a journal from it.
And you can tell from the typos that it is making me lazy, because it corrects all my typos and adds punctuation, and capitalizes.....oh well, have to do this old school.
My appointment with the transplant doctor went well. he went over all the pros and cons and they did a couple of tests and it seems like I would be a good candidate. i am now waiting for a call for the full assessment, probably sometime in March....this will be over 4 days and they will do more tests and I will talk to the whole team and counselors and social workers and that sort of thing. I will most likely have to move to Toronto once I am on the list. they want me to do pulmoary rehab 3 times a week and blood work and all that fun stuff.
I will most likely move in with my daughter, she is not happy with her roommate anyway so this will give her a good excuse to ask her to leave or find us somewhere else. At least I am healthy enough that she will not have to nurse me....lol I would never ask her at her age to do that anyway. I think we would do well as roommates.....not living as mother and daughter, i would like it to be more equal and adult. She will just have to teach me how to use the streetcars and put a tracking device on me for when I get lost....lol Luckily she doesnt live too far from the hospital that I would need to go to, it is actually right by her school.
they did say it might only take a couple months or so once I am listed but it could also take a year, you never know. I am getting used to the oxygen. At home it is not a big deal, but going out is kind of a pain. It reminds me of when the kids were babies and all the stuff you had to do to get them ready and all the stuff you had to take with you.....i am so out of practise for that kind of thing.
I have had to be careful with the cooking to....we have a gas stove, so i have had to make some adjustments.....leazrning to pin the tubing behind me while i am cooking is a good one and I have started using my crockpot more.
I made bean soup and brownies today....it is nice to have some energy again, I even started cleaning out my linen closet. What a lot of crap....where does it come from? I ccan almost see my table top again, just a few more things to go through and sort for the yardsale in the spring....or goodwill if I get tired of looking at it.
I have had a few friends drop off some books for me and I have been reading like a demon....sometimes a book a day. I want to make them last though, so I am trying to pace myself. I have started to play solitaire on the ipad.....I think I have a serious addiction starting, hours can go by and I dont even realize it.... and godforbid i am eating something......wjere did that bag of cookies go? LOL memo to self, dont snack and play solitaire.....unless you want to gain weight!!!!
I havent told my Mother about the results of the assessment appointment, just dont want to deal with it....even by email. she doesnt pay attention anyway so why deal with the crap until I have to....and then she will get the rest of the family all riled up.
I think my Dad is brokenhearted with the whole thing, he seems so down. I guess I would be to if one of my kids were seriously ill. I think he realizes how serious it is and since we are both only children, I am all he has except for my kids. I just hope he takes care of himself. he hates when I ask him, just brushes me off like dont be silly of course Im fine!
Hubby is home now and the game is on.....i will be so happy when the superbowl is done and I dont have to even hear the games......thats probably why I have been reading so much. a friend has burned some movies for me, I hope I cn get a couple on my ipad for tuesday.....it is the first infusion of rituxan and it is supposed to be an all day thing, min 6 hours most likely 8. we have to be there for 8:00am, so that means we have to leave here at 6:30.....it will be a long day. I will have to call and see if they have oxygen available or if i have to pack enough for all day....should be an ineresting day.
I guess that catches up on most things.....one thing it is nice that things have calmed down over on the lupus board...things were getting a bit crazy there for a bit. Certainly kept things interesting....lol
i havent journalled much lately, just out of shear laziness. That is the only thing i dont like about the ipad.....i cant write a journal from it.
And you can tell from the typos that it is making me lazy, because it corrects all my typos and adds punctuation, and capitalizes.....oh well, have to do this old school.
My appointment with the transplant doctor went well. he went over all the pros and cons and they did a couple of tests and it seems like I would be a good candidate. i am now waiting for a call for the full assessment, probably sometime in March....this will be over 4 days and they will do more tests and I will talk to the whole team and counselors and social workers and that sort of thing. I will most likely have to move to Toronto once I am on the list. they want me to do pulmoary rehab 3 times a week and blood work and all that fun stuff.
I will most likely move in with my daughter, she is not happy with her roommate anyway so this will give her a good excuse to ask her to leave or find us somewhere else. At least I am healthy enough that she will not have to nurse me....lol I would never ask her at her age to do that anyway. I think we would do well as roommates.....not living as mother and daughter, i would like it to be more equal and adult. She will just have to teach me how to use the streetcars and put a tracking device on me for when I get lost....lol Luckily she doesnt live too far from the hospital that I would need to go to, it is actually right by her school.
they did say it might only take a couple months or so once I am listed but it could also take a year, you never know. I am getting used to the oxygen. At home it is not a big deal, but going out is kind of a pain. It reminds me of when the kids were babies and all the stuff you had to do to get them ready and all the stuff you had to take with you.....i am so out of practise for that kind of thing.
I have had to be careful with the cooking to....we have a gas stove, so i have had to make some adjustments.....leazrning to pin the tubing behind me while i am cooking is a good one and I have started using my crockpot more.
I made bean soup and brownies today....it is nice to have some energy again, I even started cleaning out my linen closet. What a lot of crap....where does it come from? I ccan almost see my table top again, just a few more things to go through and sort for the yardsale in the spring....or goodwill if I get tired of looking at it.
I have had a few friends drop off some books for me and I have been reading like a demon....sometimes a book a day. I want to make them last though, so I am trying to pace myself. I have started to play solitaire on the ipad.....I think I have a serious addiction starting, hours can go by and I dont even realize it.... and godforbid i am eating something......wjere did that bag of cookies go? LOL memo to self, dont snack and play solitaire.....unless you want to gain weight!!!!
I havent told my Mother about the results of the assessment appointment, just dont want to deal with it....even by email. she doesnt pay attention anyway so why deal with the crap until I have to....and then she will get the rest of the family all riled up.
I think my Dad is brokenhearted with the whole thing, he seems so down. I guess I would be to if one of my kids were seriously ill. I think he realizes how serious it is and since we are both only children, I am all he has except for my kids. I just hope he takes care of himself. he hates when I ask him, just brushes me off like dont be silly of course Im fine!
Hubby is home now and the game is on.....i will be so happy when the superbowl is done and I dont have to even hear the games......thats probably why I have been reading so much. a friend has burned some movies for me, I hope I cn get a couple on my ipad for tuesday.....it is the first infusion of rituxan and it is supposed to be an all day thing, min 6 hours most likely 8. we have to be there for 8:00am, so that means we have to leave here at 6:30.....it will be a long day. I will have to call and see if they have oxygen available or if i have to pack enough for all day....should be an ineresting day.
I guess that catches up on most things.....one thing it is nice that things have calmed down over on the lupus board...things were getting a bit crazy there for a bit. Certainly kept things interesting....lol
Replies
Have you ever seen a Kindle? If you get one of those you won\'t have to make those hard copy books last so long. Especially since any book that is out of Copyright is available for free. I just ordered one and expect it any day. I\'m looking into a new Bible and some study books to go with it. I also want a bunch of the classics like Jayne Aire and the Three Musketeers. Although I think you can get Kindle books and games on your Ipad too. I hope you and your daughter have a wonderful friendship experience when the time comes to stay in Toronto. That sounds great.
I can imagine how many times I would trip over the O2 tube. I would have to wear a short one.. to accident prone. I can see it now. I wanted to get an iPad.. though it would be user friendly with the hand/wrist pain, but I don\'t know. Praying for you!
Yea! A nice long journal. I know it\'s tough to write but I am always glad when you do.
I am so glad that your assessment with the transplant people went well. And as always your courage, wisdom and strength in all this is amazing and inspiring.
I hope that Tuesday goes smoothly and you get positive results from it. Don\'t envy you the early morning travel.
I like the plan of staying with your daughter. Sounds like some great time to spend knowing your daughter woman to woman. And you don\'t have to buy a tracking device, just use your cell phone. (Scary that I have already thought that through right?? For me I mean! LOL ) Of course, it would help if I remembered to cut the darn thing on or would go ahead and upgrade to one that doesn\'t die within 30 minutes of cutting it on.
About the lupus board... glad to hear that it has calmed down as well. Happens on the fibromyalgia board too. I guess when you get a bunch of frustrated, hurting folks together in cyberworld it can become vocal carnage at times. I just have to \"step away from the keyboard and monitor\" when that starts up.
Peace, Love and Hugs
.
Yeah that lupus board is very quiet now. I like it that way. I bet your daughter is excited to have you stay with her. Glad the assessment went well I had no clue all the stuff that you have to go thru. You watch TV and they get a transplant right away. TV\'s not real, but I had no idea the hoops that you have to jump through. You sound like you are handling everything with the grace that you always emit. This must be so difficult and you write about it like it is a walk in the park. I have to admit that I might not handle it as well as you are.
Did you ever get the Red Queen? I\'m halfway thru it now and so far I like the personality of the White Queen better. Her Boleyn books are great also I have read most of them. I can\'t take my time when I read her books.
I hope you have a great day and don\'t get too close to the stove. Gosh, I didn\'t even think of that. O2 will definately cause you to do things differently. Lots of Love, Kim
Hi Beth,
Just want you to know that I am thinking of you and praying for your peace through Tuesday and this whole transplant business.
I have an IPad too and it is probably why I don\'t journal. I downloaded the Kindle ap though and love it. Just got done reading two books Her Mother\'s Hope and Her Daughter\'s Dream by Francine Rivers. Good books and quick reads. They are both available to download.
One on one time is hard to come by with our children as they get older I am sure this time with your daughter will be a special binding sort of time.
So glad the O2 is giving you some relief.
Oh by thevway. I don\'t play solitaire on the iPad but I do play Words with Friends ...it is like scrabble. If you download it and want to play type in my name (terrilynne) and we can play. It is nice because you play when you can. Play a word and if you don\'t get back to the board for a while ( minutes, days or weeks) the game is still there and going.
Have a blessed day.
Terrilynne
Hi Beth, nice to hear from you and am so happy for your transplant. It\'s crazy what they make you go thru to get one.. no matter if it\'s a lung , liver or kidney it\'s all the same. Sounds like you have a good plan staying with your daughter.. I could never live with my mom again.. just got back from an 8 day visit and Man O Man -we are 2 stubborn women! Anyhow, good luck and stay in touch. Peace, Karen
hi beth i wanted to read your journal but the font is so small i can\'t see it. do you ever use the 3 pt or bigger? i\'ll try the journal before this one. xxoo