scared
Well the last few days have been a little better but.....I have to admit I am scared. I am so short of breath with any exertion, I think he is going to recommend oxygen if this doesnt improve with the prednisone burst.
he is setting up the appointment with the transplant assessment team, it should take about a month. i have been over on the huff and puff site and it is not encouraging.
this could progress alot faster than I had thought, I'm kind of frozen and I don't know what i should be doing. I am going to Toronto on Tuesday and I will have to face my daughter with this decline, i hope she doesn't notice too much but I know she will. She is only 23 and not ready for this kind of thing.....I'm not ready for this either.
he is setting up the appointment with the transplant assessment team, it should take about a month. i have been over on the huff and puff site and it is not encouraging.
this could progress alot faster than I had thought, I'm kind of frozen and I don't know what i should be doing. I am going to Toronto on Tuesday and I will have to face my daughter with this decline, i hope she doesn't notice too much but I know she will. She is only 23 and not ready for this kind of thing.....I'm not ready for this either.
Replies
I wish I had the words to calm your fears ...of course I understand.......I\'m willing to bet the conference with the transplant team, when it comes about, will help you deal with your concerns. You are in my thoughts....
You have every right to be scared, I wish I could offer some wonderful words of encouragement. All I can do is pray and send you positive energy. You are handling all of this extremely well. Best Wishes, Kim
best wishes for you and your family, shall be thinking of you in this time of uncertainty.
One moment at a time! Rest, and stay strong in case you have to go in for the surgery. I\'m praying for you! God Bless, Jean
Good luck to you and your blessed to have such a wonderful family. I\'m sure your daughter is just as strong as you and will take it better then u think. She loves u and will be there no matter what! My daughter is only 8 but I let her know everything that goes on with me. It makes her stronger and wiser and I want her to know in case this ever happens to her! HUGS
I\'d be scared silly. I hope you get all your answers soon, sometimes that helps ease the anxiety.
Take really good care of yourself now. I hope you had an excellent visit with your daughter.
Love and prayers for you always,
Teisha
yes I would be scred too. hugs and prayers Marilyn