Support and Chronic Pain Community Group
Welcome! This room is for CP/IP survivors. This room promotes fun, family, support and compassion. No Drug Seeking Posts or Promoting of such activities are allowed here. Please, No "F" Bomb--keep swearing to a bare minimum. No posts that are "fighting" with another person/group on this board or another.
I've been pushing pretty hard lately so am probably going to take most of the day "off". Read, relax, nap a little. Tomorrow, My sis is supposed to come help me w/ a couple of projects (housework). She's not always reliable so I hope she makes it. Please say a prayer for my DIL. She's having probs. w/ her tongue (a new abnormal looking nodule) and is afraid the cancer has returned. She sees her doc tomorrow!!! Many of you may remember she had to have 25% of her tongue removed in August. I pray its just scar tissue!!! Love to all of you, my friends.
@ Duckie - we have the same issue, Hubby will not see a dime for 90 - 180 days!!
Nealytee It does sound like you are picking up. So glad to hear E was approved. Sorry to hear of DIl's problem. I too hope it is just scar tissue. I think with cancer there is always that fear no matter how positive you try to be. It is good she had appointment tomorrow.
Super D sounds like you are going pretty fast these days. I hope you will be able to get some rest before Monday.
If not it sounds as though you might just collaspe on Tuesday. Our clocks are are set back. I always prefer the fall back to the spring forward. Now that we have no children at home and are not working the time is not as important. Just for church and appointments. I use my cell phone for an alarm. I have a new alarm because my friend in another time zone posts her journal and it notifys me in the wee hours. I am going to turn my sound off when I go to bed.
Mike omg 8 hours of sleep is unthinkable for you. I am glad you got it. It will help for today and the start of the week. Hope no more windows broken and that all is well with you my friend. I miss your journals.
Myshoes for sure this is the place to get to know everyone. Like Neely said it is like a coffee break. I am glad you are posting.
Manny shame on that insurance company. They really seem set on making your life miserable. I hope you feel better soon. Also that the doctor will find something your insurance will pay for and that you can tolerate.
Wishing you all less pain today.
hippytoo
So far no headache and Duck I am going to ask for Flexerail as I took it awhile ago and it did not work great but I had no ill side effects and I will ask about the one you take and see what she says. I am so sensitive that is why she prescribed me the skelaxin and then stupid insurance is cheap. I dont have any muscle relaxers now and I was having a hell of a muscle flare that is why she prescribed so that really sucks as with the added side effects and me being sick it has made the pain all that much worse.
Then my poor birdie was so sick last night and I thought we were going to loose her I had to put her in the small ER cage and tend to her all night she was at the bottom hardly moving but then got up this morning and jumped on the perch and seems like she is doing better. I love my little birdies and was so sad and she is so cute and nice. You know your bird is sick if they let you pick them up without any complaints when they usually dont.
hope everyone is doing good
Did everyone set their clocks back? I slept from the new 11:20 to 6:30 and then went back to bed and slept another hour and a half. Bob and I had a big time at his gig last night. There was a retirement party going on when we got there and we invited them to join us. The guys started almost a half hour early to entice them and several joined and stayed. It was definately a rock and roll crowd which Bob and the leader love to play to. The bass player is older and more old country but he was a good sport.
I guess my big news is the earthquake in Oklahoma. We lived there for thirty years and there was never an inkling of one. I am trying to find out which fault line it was on. Just talked to my sister who is due west of OKC and she said they definately felt it but no damage to her home. She said all of her pictures need to be straightened. We had our share of them while we lived in the Bay Area. Mike did, you feel it.?
Well, I need to finish my chores and get in the shower. My husband plays at four and we both have to drive. I would really like to see that interview with Andy Rooney tonight. Love you all and big hugs,
Melinda
I took another med from an old stash and am feeling pretty weird, now. A friend called to see if I'd give her a haircut today! Normally, I would say yes no matter how I felt, but not today! I even shocked myself! And that was even before I started feeling strange. Saying no was a huge deal for me. My therapist will pee his pants when I tell him, tomorow! I think his chair is leather so it will clean easily.....
Nope, didn't feel the earth move here.
Didn't sleep well and woke up with a sick kid. Eric's real sick and I've been looking after him while Joy and Victor ran and did all thier Sunday stuff. Eric and I took a long nap this afternoon in the recliners and he's been sleeping most of the evening so he'll probably be up all night.
I haven't felt to great today, it was hard to motivate myself to do anything and then when I did it just made me hurt so I'm a little frustrated and my back's really bugging me tonight.
It's been a long day and probably not over yet,
Mike
Sleep well everyone. Wishing you a minimal pain day tomorrow. Big gentle healing hugs,
Lisa
Take care and BIG HUGS to you all,
Toni
What usually happens to me is I dont plan to rest all day and then I do. I hate days like that as I feel so unproductive and even those days when I dont rest and dont do a thing that is worse as I feel like it was a waste all the around.
So my niece told me last night that Mariah said she is not feeling well so if she is not feeling well in the morning just call her in. I thought easy for you as you are at work all day and I have to watch an five year old. Now I know if you tell a five year old if you are sick just tell auntie and you wont have to go to school so you all know if she wakes up today and remembers that she is not feeling well weather she is or not. She should of told her just tell me in the morning and I will decide what to do, as if she is feeling ok she is not going to say so.
Been having some really weird dreams lately I dont know why but when pain is worse the dreams are so odd and I wish I remembered them long enough to write down all the details I could write one heck of a book. Alot have to do with changing like I am able to morph into another person when I need to. I would love to know what that really means.
I guess my day is up in the air depending on weather the baby is going to school or not. I am so used to taking a nap during the day I dont know what I will do or feel if I am not able to. She is out of taking naps during the day and she is not the child were you can lay down and shut your eyes and relax as she knows and will tear up and get into something. It will probably be my stuff LOL
Hope all is well, 5.6 earthquake in Oklahoma hope any of our friends in Oklahoma is fine.
Eric slept all night but I didn't, he's still sick and Joy's taking off and taking him to the doc.
I'm hurting this morning and really tired, I'm kind of glad I only have to get one person out the door today. As soon as that's done I'm going to try to sleep some.
Mike
Should be an interesting day. I'm home with a sick kid and I can't eat today because of my rescedualed buttscope tomorrow. Haven't taken the stuff yet but it's comming and I know what's comming with it.
I figure there's no point in taking my meds tonight as I'm sure they will go right through me, so I plan on banking them. I'm sure I'll be a wreck tomorrow morning but by 8:30 I should be sleeping peacefully.
Speaking of sleep, I slept for almost 8 hours last night. I'm rested but it's cold and rainy here and I can feel it in my bones. This will be a rough day between caring for Eric and running to the bathroom.
Victor went to his first basketball game as manager last night and he didn't get back until around 9 last night. Joy was pretty worried by then because the weather was so foul. He did good and had a great time but now he understands why he needs to have all his homework done on game night.
Sorry I haven't been able to keep up on here the last few days but as you can tell I've been pretty busy.
I'm a little worried about tomorrow, wondering what they'll find. It's been a couple of years since my last one, and of course I'm wondering "what else".
My hands are full today and tomorrow won't be much fun. I'll try to check back in after.
Hope you're all well today,
Mike
Kids do not have school today and I am sort of glad it is blessing and a curse all at the same time, I had to take my son to get the new hot video game at midnight release and the whole ordeal lasted four hours in line and on my feet that are already bad feels like my bottom of my feet are bruised and they hurt to walk on. I did finally make a appt with a foot doctor I think a specialist is needed.
So I got to sleep in but now I have kids here my 5 year old niece to watch and my son had two friends spend the night but they were up playing this game so I think they will sleep most of the day but if I need to go and lay down they will not get up to watch my niece.
I came home and nobody here cleaned up and they actually wanted to know if I was making dinner at this time it was 830pm and I had to still go and stand in line at midnight so I was like why could you all not go and pick up something or go make something from the pantry I was a little miffed to say the least.
Well I am going to try to do things in little amounts through out the day and right now put away dishes. FUN, FUN , FUN
Happy Tuesday. Just a quick check in. I have a full day today.
I have a Bible Study this morning that I need to get ready for soon. I have got to get a cup of coffee, though. I have been up since 5.
Mark has two MD appts today but I doubt he will keep either. Drank too much last night and came in as I was getting up.
I have one at 3:30. Had a recheck of the cyst yesterday and she opened it up again. I go back next Monday.
I am headed up to Redmond, OR in the morning with my girlfriend who owns a home up there.. We will be back on Friday am. Bob is off but will sleep. I will probably be back before he wakes up. It will be nice to be away from some of this mess here. Mark will have to find a way to work besides me. We have an adequate bus line so no guilt trips for me.
Mike, I wish you well for tomorrow. My turn is next year due to polyps. I would still take your meds. By then everything will be out of your system. But call your MD. No need to be in pain if you don't have to.
Minnie, you have been given a lot of good advice. Stick to your guns. I understand your pain, hon.
More rock and rollin' in OK last night. Between that and all the tornado warnings issued, I am prety sure that most Okies think that the end of the world is right around the corner. I am not saying that to be rude at all. I am not so sure, but who am i to say that it is not? I do know that EQ's are no fun and I do not care to ever be in one again.
The rest of you all, take care and make it as good a day as possible. I will post Friday. No computer access at their home up there. Just lots of peace and quiet.
Big hugs and love,
Melinda
I dont know how many days in a row this is now for my feet to be aching all day but it is getting on my last nerve to say the least.
Yesterday it was not so bad with the kids home all day but the only draw back is I could not take a nap till my niece got home and that pushed back everything and I ended up doing laundry till midnight as I try not to over do it and keep on taking breaks. Stairs are not fun when your feet dont want to work right.
I so wish I had first floor laundry
Today just more of the same around here, I dont know if that is good or bad. Today is our garbage day and that is the day I usually clean out the fridge and pantry but I havent gone shopping in awhile so not much to clean out.
I am working on my quilt and I finally got to the point it is ready to quilt so I will have to be sitting at the sewing machine that doesnt sound so bad but it can put a strain on my back so even fun things have to be done in stages.
Hope everyone has a good day