Hi Tony, iam glad you found our group. Iam so sorry you are having so much pain. Are there any kind of meds. that help you at all. I know what it like to be in so much pain and feel hopeless. Everyone here has been in the same predicament. People here care and are always willing to listen and share their own experiences. Please let us know how you are doing or just need to talk.

Hello Everyone,
Let me begin by apologizing to everyone for all of my typos in my posts of late, or maybe always I don't know. I've really been struggling these days with brain fog. And I think by now most everyone knows that I have a brain tumor, well it is giving me trouble. So hopefully you can read around all of my typos and still understand what I am trying to say. Unfortunately my brain does not recognize the error until later and then of course it is to late to correct it. So please bear with me and I will do my best.

Gaye, I know we have not met yet, but I am glad that you are back with us and I look forward to getting to know you. It was nice that your sister was able to visit!

Elizabeth, Sorry to hear that your energy level is so low...is it due to the heat?

Tony, I join the other's and welcome you to DS. This is a great place to be to find friendship and support. I am glad that you found your way here.

Have a good evening everyone! Hugs, Cathy

Well...here I am, still in a load of pain on day three since having one good day earlier in the week.

I have to give a perm this morning which is the most painful service I offer. Oh well...what can I do? My co-worker's last day here was yesterday so I've lost a chunk of income. A new woman will be resnting my other station soon, but needs to build a clientele before she'll be full time.

I'll manage, but I sure wish working could be a little less painful.

Wishing everyone blessings,
Cherry

p.s. If you needa chuckle, read my new exercise post!

HUGS TO ALL =) x

Good Morning Everyone,

It's so nice to see the support we have for each other. I have an appointment with the surgeon today for a check-up on the SCS. It's working great so far.

I hope that everyone has a great day and I'll try to pop in later.

Hugs,
David.

TGIF,
I dont know why I still say that, now that I dont work really weekend's are not a big deal. As A matter of fact when I worked they didnt matter because I worked the weekends it is part of being in the restaurant business.

But it sounds good so I will say it

I am feeling a bit better this morning, went to get a ultra sound yesterday so I am sure the doctor will call today but doesnt that figure just when you are getting answers it doesnt matter because the pain starts to go away.

Gotta go let out the chickens, talk to you all soon

Good morning ! Hope your day is starting out well and that everyone has a wonderful weekend. I know of you have apps. And I wish you well on them. @ Manny as I said eary this morning----- I hope you woke in the middle of the night and peed that little sucker out and flushed him. GOOD RIDENS ! HATE TO SEE YOU GO ! BYE ! @ Cinnamon praying for you and your daughter. Know that we are with you through this. Hugs to all

CW1955, don't think anybody cares bout those typos, only that you're around and filling us in on how "you're doing", we love you!!! Find myself apologizing too so I understand as I'm sure others do. Also have "brain fog" and some of the simplest words I find I can not spell, then moments later it comes to me, what the heck, lol??? Feeling fluish today and "tired'. Glad it's Fri. so I can rest Sat. if necessary. Had to re-schule my appt. w/soc. sec. as I could not find the building, was looking for the number. Downtown Rockford,Illinois. First time driving there, should have done a test drive,huh??? Anyway,my sis-in-law drove me after the fact so I did show up, late n all,uggg!!! Not stressen over it, that's for sure. Thanks to all you wonderful folKs for your' prayers/support. It'll all work out. Hey fibrolizzy, I say ya all and I'm from the north (Wisc.) have for a long time,lol Just don't ask where or how I picked it up,couldn't tell ya all,lol love & hugs, Vicky XXXXXXXXXX

Aww Debear you know you have always been beary special to us.

11longyears, I wish I would of saw the stone as I would get it and frame it and title the picture my worst week or two hope it is gone and now I can get back to normal what ever that is.

CW, dont worry about typos I didnt notice any anyways as long as you are here that is all that counts in my book.

I wonder what book that is and where that saying came from:)

@ Manny, I took my 80 year old aunt how had been fighting with her doctor ( it was a huge go around ) for months about getting her stones out. Her doctor wouldn't take them out because he said the heart dr didn't approve of the surgery and it was going back and forth. So I got involved and took her to ER and they were finally taken out the next day. Oh my god, you would of died if you would have seen how Many and how Big they were. They were Beautiful ! Seriously ! It was the talk of the hospital . Well except for the dr that wouldn't take them out for months. People that had no reason to come in her room from all these different departments. She had some that were the size of quarters maybe even half dollars. The look like black stone jewels. They look like someone shined them up all pretty and the way they looked on the picture was like they were perfectly displayed from a jeweler. I'm not kidding the staff and other drs that she had said they have Never seen anything like them before. People would ask how she was after her surgery and I would just say fine but you should see how beautiful her stones are. Lol

Hi Tony! Nice to 'meet' you! This post is a great way to get to know people. But even if you don't know you can msg anyone anytime. Every one of us will answer and support you. Pain sucks!
Glad to see you here.

My rfa is helping my pain. tomorrow I plan to scooter up and take my disabled daughter to the fair. Hubby fixed my ramp. Am covering it with plastic because rain will destroy it. Hope that doesn't happen!

I hate meds and constipation. Was up every hour on the hour last night in the bathroom for over doing it ...but it beats going to the ER. I so wish I could be like alot of you and be regular. I've tried everything even scripts. I have an awful time. If this rfa works I will drop the dan :) meds! we'll see. Yesterday I took less. There is a pill of relastor in clinical trials that should help us...for opiod users and my doc says it works. Right now it comes in shot form but I can't do that lol

Tipper...I read you are getting a drug pump! Let us know how that goes! does that mean the scs isn't enough or is it more pain because of your fall? We're concerned and know your time is limited but hope to hear from you...how you are doing!

Hey Everybody,
I saw the surgeon today for a follow-up. They took x-rays and the paddle lead in my spine has not moved at all. He raised the level of work restrictions a bit and was very happy with with the progress I've made. I will go back to see him in 5 weeks.

I hope that everyone is doing good and I'm glad to see people sharing freely of themselves to support one another.


I am proud to be a part of this group.

Thanks to All,
David.

That's great news, David! I'm so happy for you. Did you get something different for backup meds?

Just stopping by to say hello and wish everyone a pain free weekend. I've had an ok week, my pain level is down and I'm hopeful that it will stay that way. I have a trip to Maine planned in a couple weeks but travel seems to cause my symptoms to flare. This break in pain has been a longgggg time coming and I'm so afraid of stirring things up again. I'm wondering if I should skip the trip or risk it. I'm so confused......hmmm, decisions, decisions!!

Good Morning,

@Cherry, I have a couple of different muscle relaxers, I just have to use them more. They make me feel a little draggy, but I'm sure I'll adjust.

@Jaeann, It's so great to see you!!

@ Manny, I hope you're gonna be alright with all this stone stuff??

I woke up this morning to my wife with Rocco in her arms, all excited. He did his first poop outside, and pee-pee. Then we went to Walmart, I brought him out when we came home and he didn't go. 5 minutes later he peed on the kitchen floor. Well he's learning.

I feel decent today. I'm going to try and relax on the couch, my favorite pastime.

I hope that everyone is doing OK.

How about someone just watching coming out today just to say I'm here or whatever you want. We would love to see you.

Hugs to all,
David.