I wish I had as much hope as I used to have.Never doubted my courage or fortitude.Now I just hate waking up. My PD's have lowered my meds to a dose that's not working.I'm so needy .A HUG would make me cry,

paintedlady100,
Thank you for your post. I, along with others, have had days where waking up, knowing that there wasn't a whole lotta good going on was tough. If you once had hope you can have it back. The people who are here are so awesome and understanding that the are life changers. Tell your doctors that what they are doing is not working. Look them in the eye and be honest with them and they should help you.

My profile is open and if you ever want to talk, feel free.

Hang in there.
David.

sorry that you're feeling low, painted. this post is getting so long, it's really hard to keep up with. there are so many people i want to send my hugs to. i wish us all more manageable pain. yesterday started out so hopeful then got worse and worse. i decided to sit outside in my one comfy chair and read between rain today instead of sitting here at the computer, so i'm behind on a lot of posts. this place is a lifesaver. painted i hope that it gets better soon. you will always have support here. hugs to all!

Do find another doctor to help you. This is insane. Don't let it take you into that place. Find help asap. Don't cry but here's a hug
((((u))))

painted-we have all had days like that where I literally did not want to get out of bed. Today I actually went back to bed for a half an hour and then officially started the day. It's tough. Chronic pain really wears you down. But the nature of chronic pain is that it ebbs and flows and there is a better day waiting for you. I wish I could personally deliver it to you. Here is a hug until it arrives.
Hank

paintedlady100 - I had a doctor last year that didn't understand and wouldn't prescribe enough for the pain I was in. I know how frustrating and hopeless you feel. Is there any way you could get a new dr.? I have a new doc now and she's great; well at least compared to the last one. She is helping me get to the specialists I need to see to get to the root of my pain and she is prescribing what I need to somewhat manage my pain for now. A couple days ago I had one of those horrible 'can't get out of bed' days - its awful I know. Yesterday was a bit better and today it only took me 2 hrs to get from awake to out of bed... that's about as good as my days get. Hope you are ok (((((hugs)))))

I have fibro, peripheral neuropathy, osteoarthritis in my entire spine, one leg's shorter than the other from my hip surgery, so I walk with an exaggerated limp....it throws off my back....

and...

not ONE of my $#%#@ doctors will rx a pain med...."Neurontin should be helping".....


and....

IT'S NOT!!!!

I'm SO p*ssed at the medical profession!!!

WHEW! That felt GOOD!!!

Hey, David, let's go for 1,000!!!!
'

Corri, I was just coming in to say, new challenge~ 1000
Great minds think alike. Do you a pain management doctor?

Corri, I'm sorry for your pain issues and that your doctors don't seem to be helping you with it. It does help to talk about. I hope you can find one that will help.

I am tired and scared...and need to get some sleep...and I just love you all so much I want to read everyone's post, but I haven't got the energy or eyesight to do it....so very sorry. So, I love you all. Nighty night

Paintedlady,
Here's a soft virtual hug so it will not hurt that much. No one should hate waking up and I am so sorry you are going through such a hard time. I had a time like that not to long ago when my doctor was trying to get the right med for me and I remember that feeling so well. I made a doctor appt the next day and went in and said we need to do something about this, I know it is hard but sometimes we just have to put our foot down or move on and put it up some other doctors behind.

You deserve a quality of life and please I know it is hard but dont give up just get mad and determined to get to where you want to be in your life. Tell yourself I am going to spend the next month trying as hard as I can to find that one doctor to listen and be a bit aggressive to get to that goal.

Let us know if there is anything we can do for you.

Paintedlady, I agree with what manny has said... you have to get determined and insist on your right to have a decent quality of life! Remember that movie where he yells out the window : "I'm as mad as hell and I'm not going to take it any more!!!" well you don't have to take it either! Keep on reaching out here and I'm sure you will get lots of support and encouragement to help you get your hope back.
That goes for Corri too... why on earth do the stupid docs not realise you have a condition that requires pain meds! Don't give up... keep hunting for a doc who has the compassion to treat you adequately... you deserve a quality of life too!!
Evasthoughts I am sorry for how you are feeling. Is your pain stopping you from sleeping? It sucks when that happens cause it usually sets up an unpleasant cycle of not enough sleep making the pain worse, as well as hindering your ability to cope with the pain. I hope you will feel better really soon.
I'm heading up to my son's for the weekend, so won't be online for the next couple of days. Wishing everyone a good weekend filled with sunshine and laughter... and with minimal pain.
Take care all... hugs... Gaye... xxx

Good Morning,
It's wonderful to see everyone here. I was almost able to get out of the bed myself this morning. I probably could have, but my wife would have yelled at me.

The SCS is working good. I figure after a couple of more weeks of doing what the doctors say it should be good and healed enough to focus on my goal of lowering my hydrocodone.

I am getting out of the house today to get a haircut and run some errands. I feel pretty good.

I hope we get some more people posting here. this thread has really helped me.

Signing off. I'll be back later.

David.

PAULINA
I'm seeing a pain mgmt doc; he's an anesthesiologist; he gave me a cortisone shot in my sacroiliac joint; so far it's working....he said he WILL "possibly" rx 5mg oxycodone for 2 x a day...next visit. He's a compassionate guy, so I think he might.

He also said, "Neurontin, pbsssst" (raspberries sound)

He may also rx ultra sound and massage for my neck...that's GREAT....BUT....with vertigo...I can't drive...(well, I can, but it's not straight, lol)....and it costs $90 to take a cab...hmmmm what to do? what to do?

Corri,
Does the doctor know it cost so much for you to get to the appt he might have another suggestion and I thought that some city's have some type of transportation to doctors appt and such, might be worth looking into and hopefully your doctor can get you to another doctor for the massage somewhere closer to you.

He might think that you get a ride from someone. I hate when doctors say next appt we will do this and that and they dont realize that that month sucks while we have to wait for our next appt. Why not just RX it and say if you need it take it and that way people do not suffer.