Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
Offline
- So it would seem that Spring has finally arrived in Rochester, NY....and with the arrival of Spring comes the drastic fluctuations in temperature and thunderstorms.There was a time when I found all of this to be exciting and fun...not since I got...
- Has anyone with IH had a hysterectomy and found that this helped with their pressures? At least once a month, typically just before the start of my period, I end up in the ER with IH pain that cannot be controlled with medication at home. They...
- Does anyone here ever have difficulty when they sneeze? While this question may seem VERY bizarre, I have been having pretty SEVERE responses when I sneeze.If I sneeze, (which maybe happens once a month), the body's normal reaction is to instantly...
- I just wanted to type a quick note to tell you all that I'm sorry for my absence, that I miss you all and I'm praying for you daily. As far as I know I haven't passed my "kidney stones"...and from what I've been told I should know, as its quite...
- Hello all. Just wanted to drop a quick note to say hello and let you all know that I am okay and am thinking of you all...even in my absence. I've been busy and then not so busy. I had a brief respite from my disease a few weeks back and was able...
- As I mentioned in my last post, recently my PCP has prescribed the Fentanyl Patch as a method of treating my chronic daily pain. It's been a little over a week since I started the patch. These patches are 50 mcg/hr and are currently prescribed to...
- PCP just put me on Fentanyl patch for chronic long term pain...we'll see how this goes.
- As to get to the point and try to keep my post short, I'll skip some details and just try to share the important stuff.I saw my Neurosurgeon - Dr. McGregor last Wednesday. I explained that while my shunt works it doesn't work consistently. That...
- My mother has MS. I have Intracranial Hypertension. Some of my symptoms for IH are very similar to MS. As my mother has it, and I've had similar symptoms I thought it was imperative to be checked for MS. An MRI was done. I was shown the results...
- I've driven 5 hours so far out of a possible 7 that I'll need to drive to get from Rochester,NY to Columbus, OH for my appointments with Dr. Katz and McGregor. I had to take my 2 daughters out of school for these appointments because my husband had...
- Some of you might wonder why I haven't been online as much as I once was. To be honest...I'm not doing as well as I once was. After my shunt surgery I could go 3 or 4 days, living my life and doing typical activities before I crashed and spent the...
- My 13 year old is so ANGRY. We pay over $3,000.00 a year for her dance classes. We pay monthly for her to have a working cell phone. She has cable TV in her room and she has her own laptop computer. Moreover, we take her to and from dance...
- My PCP told me last week that I'll never be able to work again. He said that I "have shunt disease". He said it's a real disease. Hmmmm....I don't know if that's true or not, and as I've reported many times before while my shunt has helped my...
- Last Thursday while visiting my PCP I mentioned the difficulties I've been having with insomnia. With the thought that the lack of sleep may be exacerbating my symptoms, my doctor wanted to prescribe Ambien. I had heard some negative things about...
- I've read many a report regarding IIH over the last year and a half. In many or these reports they touch on the one symptom of IIH we don't hear or talk much about....That is how IIH affects us mentally. And, I'm not talking about depression...