Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
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- For those who read my recent update regarding my hospital visit you know of my struggles with trying to find a doctor in NY to take charge of my care, all the while having a NS in Ohio who claims my shunt works just fine although I still have daily...
- Just spent a week in the hospital after a very eventful two week stay in Ohio. Situation is bad. The hospital stay was a nightmare. I'm doing better, but, I've made no headway in finding out why this continues to happen and nobody seems...
- As many of you know I am ALWAYS doing research, ALWAYS trying to find out what it is that has caused my IIH. Also, many of you know that my mother has MS and Sneddon Syndrome, My Aunt has RA and my daughter may have Lupus. What is causing this...
- Many here have asked me about my trip with my daughter for Nationals to Ocean City, MD. We went for her national dance competition. We stayed in a condo with the studio owner, one dance teacher, one other mother and 6 other girls. By the time I...
- To start, autoimmune disease seems to affect all the women in my side of the family. My Aunt has Rheumatoid Arthritis, my mother has MS, and I suffer from Idiopathic Intracranial Hypertension. My daughter is 13 years old and she gets migraines,...
- Shunt catheter hurts...really hurts...like really, really, really hurts. Like think of the thing that hurts you the worst and than multiply that times 1,000 hurts. That's not even how bad it hurts. It hurts times infinity (as my 9 year old would...
- I think Betty and I have eluded to this before but, several times since my shunt surgery I've gotten this intense and horrible pain down the back of my head into my neck. It's not on the side of my shunt, but rather more central along the back of...
- I've mentioned here so many times how blessed I've been to have a wonderful supportive husband. One who helps taxi the children, fix meals, clean, do laundry, etc. when I'm down and sick. Of course, when I'm well I pick up the pieces and help...
- As many of you know it has been suspected for quite some time that I may have CSF Rhinorrhea. Most recently, my nose has been running a great deal again. (And no..it's not allergies...Yes....I'm sure. LOL.) Many of you also know that I had some...
- The day before yesterday I went to an appointment with my primary care physician. I spoke with him about my recurring ups and downs with my IIH. I spoke of my observations about the shunt and how I feel that while it works it doesn't seem to work...
- First...The other day I was trimming off some of the dead growth on one of my plants outside. I was bent over at the waist for approximately 10 to 15 minutes. When I stood up, I felt ENORMOUS sharp pain in my abdomen on the left side about 2 or 3...
- So many times many of you here on this board tell me how strong I am, how I inspire you, and how I am seemingly able to do so much given my battle with IIH. There is no doubt that I do try to accomplish all I can in spite of my illness. And...
- Ever since my LP over a week ago, I am having neck stiffness and pain along with back pressure and pain. Does or has anyone else have/had this problem?MM3
- A friend recently sent me this link regarding a study on chronic pain...thought you might find it interesting. http://updates.pain-topics.org/2010/04/severe-chronic-pain-is-killer-study.html Guess it goes to show that it is better to get your...
- I'm scheduled to have my 14th LP tomorrow and I'm trying to think of anything and everything I can to get out of it. So...I know it's late, but let me throw my situation out there and see what you guys think. (I actually put this info in a...