Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
Offline
- Friends of mine in Columbus, Ohio just informed me that this past week there was an article in the City Newspaper about progress being made locally for the care of children with PTC. The name of the newspaper is the "Columbus Dispatch". The...
- *** PLEASE NOTE THAT WHAT YOU ARE ABOUT TO READ IS AN EXCERPT FROM THE RAMBLINGS OF A MIND OVERRIDDEN WITH GUILT ABOUT THINGS OF A PERSONAL NATURE AND ARE NOT MEANT TO BE INTERPRETED AS OPINIONS ABOUT ANYONE ELSE BUT MYSELFSo....several days ago a...
- To recap, I had Paps when I was first diagnosed over a year ago. Since that time my paps have improved and while I still get HA's and some pressure, my eyesight hasn't been the biggest part of my IIH story. Just several weeks ago (right before...
- Woke up this morning with a MAJOR headache; just in time for our 7 hour trip back to NY. Took some Dilaudid which helped to take the edge off. Called my NS and they told me to come back to NY and schedule another LP. YES...an LP...not a shunt...
- So, my appointment was at 3 p.m. and I saw my NS' nurse practitioner at approximately 5:45....One would think that driving 352 miles would have been enough to be seen more promptly. I digress....She asked how I've been and of course I filled her in...
- As many of you know, since my shunt surgery last November, I've still had some problems. The worst of which is that I had my surgery done in Ohio, but, I live in New York and have had difficulty finding a NS who either knows enough about shunts or...
- Is there one??? I know this subject has been touched upon before, but I don't recall if anyone came up with any clear answers. While I've suffered from terrible headaches for over 20 years, it is true that my body didn't get all out of whack until...
- It's been awhile since I've had vertigo, and I guess I had imagined that once I got this shunt...things like the room spinning, nausea, pain would go away. No such luck right now. We celebrated my 40th birthday today with me on the couch because...
- Woke up yesterday morning with horrific head pain. I took some Dilaudid and couldn't get relief. My shunt valve and tubing felt really swollen, and within an hour or so I was in the restroom vomiting. As such, we went to the ER for treatment. As...
- Over the past week I have experienced some inner ear pressure in the right ear only. (Which is the same side my VP shunt is on.) In addition, there have been times this past week when I have sat down to eat and I would feel increasing inner ear...
- I've been up 5 hours now and I'm sleepy again....what's that all about???
- Well, it has been 2 months since my programmable VP shunt was put in and as many of you know I have had five or six adjustments since. Initially I had low pressure HA's, but most recently, it was thought that I had a high pressure HA and after a LP...
- After having high pressure symptoms last week and an opening pressure of 240 I became greatly fatiuged. I slept all weekend and awoke Sunday morning with the absolute worst pain EVER!!! This sharp stabbing pain on my right side literally felt like...
- I know I haven't been on here for awhile, and for that I apologize. As many of you are aware I had a VP shunt installed on November 3rd. Since that time, I have had some problems and as such haven't been online. So here's the update: - I...
- Did anybody see tonights episode of Greys Anatomy? They talk about excess CSF and brain shunts. If you haven't seen it yet, watch tonight!