Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
Offline
- I'm now up to 75 mgs. of Topamax and have been on the medication for 3 weeks. I am downright stupid. I can't think, and can't remember much. Moreover, my pressure feels ridiculously high, even though a couple of weeks ago when I saw the neuro and...
- Do any of you fear life? Like a normal life? Because of your disease do you fear setting up lunch dates with friends, as you may end up sick and not able to make it? Do you fear starting a new job because you may end up sick all the time, or...
- Okay, the good news is that I made it through the weekend with my family visiting and like 87 hours of watching dancing at the recitals this weekend. (Although tiring...it was worth it, my girls were awesome!) I did have high pressure over the...
- As many of you are aware, I have suffered back pain for awhile now. Both in my upper shoulder/neck and in my lower back. My low back pain makes it difficult to bend over and even more difficult to stand back up. (I feel like I\'m 90!) Anyway, I...
- TJ I tried to get you on chat to ask this question...but, you apparently ignored me. (THANKS YO!)Anyhoo...as you all know, I have recently been feeling pretty terrible. This morning in particular was very difficult with neck and back pain plus...
- The bottom has finally dropped out and I feel like I'm drowning in pain. My head hurts horribly bad. I've tried vicodin, morphine and dilaudid, along with phenergan and valium for nausea....nothing is helping at all. I do not want to nor can I...
- I thought I had seen a post here at one time regarding dental problems caused by intercranial pressure. I rarely have dental problems, but, over the past few days my gum in the back of my mouth has become inflamed and painful. Now certainly I...
- I touched on this in KS's posting on Topamax but, I never got a response....so, I'll try again here.I have been having the neck and shoulder pain we have discussed so often....but, the pain is radiating down my spine and into my lower back. It is...
- As many of you know I stopped taking my Diamox and all other medications almost one month ago. Since that time, actually since I have received my diagnosis, my husband has treated me like a fragile flower. This is a blessing in as much as I have a...
- Just a quick note to all of you Mommies who are suffering with PTC, yet have still managed to be there for your children's first steps, school events, sports competitions, talent performances, holidays, birthdays, and every other important moment of...
- YEAH....I'm so excited I sent an email to the IH Foundation last night after filling out my registry. I asked several questions about my complex number of symptoms. I thought you all might be interested in knowing what information I was...
- I am writing to see if anyone here has had gastric stomach ulcer. I think I may have one, and I think it may have developed due to the muscle relaxers and the corticosteroids that were used for my PTC. I have a gnawing ache in my upper abdomen...
- Just for the curious:I stopped my 2500 mgs. of Diamox and 20 mg. of Lasix that I was taking daily, cold turkey, on Friday afternoon. What has happened since???....On Saturday, I felt increased pressure in my head and I looked a slightly swollen. ...
- I shared this message with one of our members in an email because I was quite upset. But, after some thought I have decided to post this because I think the way that the negative ways we are treated by the medical community should be discussed as...
- Pressure must be up as my face has been swollen for the past couple of days, my head feels full, and yes.....the "whooshing" noise is back in my left ear keeping time with the beat of my heart.How is this possible when I'm taking 2500 mgs. of Diamox...