Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
Offline
- I was newly diagnosed with IC several months ago. Today I went to the gynecologist for an exam and Pap smear. I'm 45 years old. I have three kids and I've had many pelvic exams over the years. This was the first time I've ever had pain...severe pain...
- Does anyone have IC who doesn't have to go to the bathroom all the time? I was just diagnosed after suffering severe pelvic pain and blood in urine (no infection) for last two years. They also found squamous Metaplasia on my bladder....but, I don't...
- I'm a 44 year old mother of three who grew up having multiple severe UTI's and kidney infections. In 1995, I had kidney surgery for a congenital defect in my right kidney. As an adult I've had several kidney stones. For the last two years, invisible...
- Hi guys. Today I'm not writing about IIH (albeit, I have found out I'm due for a shunt revision). But, I'm writing about my 17 year old daughter Jacqueline who suffers from two autoimmune diseases. PANDAS (Pediatric Autoimmune Disorders...
- Hello. My 17 year old daughter battles RND. Hers was caused from the strep virus. She also has PANDAS. (Pediatric Neuropsychiatric Disorders associated with strep infections). In PANDAS the strep invades the brain and wreaks havoc. That same...
- Hello. I am 43 years old and suffer from secondary Pseudotumor Cerebri or secondary intracranial hypertension. A condition where my body produces more cerebral spinal fluid then it can drain off essentially causing excess pressure that squeezes...
- My 17 year old daughter has been suffering for the last 2 1/2 years from fatigue, pain, weakness, nausea and anxiety. During that time she's had to quit dance, cheerleading and feels completely removed from her friends and the high school career...
- Over the last 5 years or so I've had an ever increasing number of RA symptoms and they continue to get worse. During Christmas when I was extremely stressed and busy I couldn't use my hands at all because to try and even lift a shirt was too...
- Okay...So I'm a little freaked out. I am 43 and have had some health issues. Last year after not having a period for 3 months I saw my Gyno. The internal ultrasound showed a thickened endometrial lining of close to 1.5 cm's. I was placed on...
- Hello! My doctor and I are trying to sort out a medical mystery which landed me in the hospital this past June. I have a condition called Secondary Intracranial Hypertension, (My body produces more Cerebral Spinal Fluid (CSF) than it can drain off...
- I know I have been absent on DS for a long time now...and for my oldest DS friends...I have missed you. I was once here daily, several times daily, trying to offer all the informatiin I learned about IH, what I learned works and what doesn't. I...
- Friends:I know it has been a long while since you have heard from me here on the chat board. At one time, I was here every day and have been a member since 2009. But, in the last year, as my disease has taken it's toll I've not been able to spend...
- I am a 42 y/o mother of 3 who was finally diagnosed with Secondary Intracranial Hypertension 2 years ago. For those of you who may not know what that is...basically for unknown reasons my body produces more cerebral spinal fluid than it can drain...
- I can't remember if or when I've asked this question before, but, does anyone else experience all over pain?I know it's normal to experience neck and back pain with IH, along with head pain and abdominal pain if you have a shunt. But, I have been...
- For those of you who know my story, you know what struggles I've had trying to find a good doctor in the entire state of NY who knows anything about treating Intracranial Hypertension. Of those I have seen here....most have been incompetent at...