Monkeymom3
Status: Tired of having IH!!!
Mood:
Ok
Offline
- Hi all:Following up on my dear husbands journal entry....I have fallen into the rabbit hole and some strange things are going on.As many of you know, I had the VP Shunt surgery last Tuesday. I was pretty miserable when I went in, as I had pulled a...
- Came to Ohio to see Dr. Katz for my Friday appointment. As we inched closer to Columbus, however, I began having head pain and pressure. When we arrived at my mothers I took medication and felt a litle better, but, then took the children trick or...
- My children miss their mommy, my husband misses his wife...and quite frankly, I miss myself. I miss the woman who got dressed up, did her hair and makeup and went off to an important job everyday. Now, I'm lucky if I get out of my sweatsuit. I...
- We may have talked about this before but as I have the CRS syndrome...I don't recall. So, here's my problem...My symptoms aren't too bad as long as I don't do anything. If I lay around all the time, for the most part, you wouldn't even know I had...
- Ironically, I may be having the same problem that Krystell is having. Weird. 24 hours ago I began having SEVERE diarrhea. (I know...probably too much info.) I don't have fever, nobody else in my house is ill and as far as I know I haven't eaten...
- So, my doctor took me off of Topamax because my hair was falling out. She wanted me to start on 250 mg. tablets of Diamox. I thought I had these at home so I didn't ask for her to write a new prescription. Well...I screwed up....what I have at...
- So, thanks to Bax....I've started a blog. I've wanted to start a diary to keep track of my daily ups and downs with this illness and give my friends and family a place to go to check in on me. In addition, like Bax, I too will be organizing a...
- Sorry I haven't been on for a few days. As most of you know, I was in Columbus, OH for the past month visiting my family. As such, I was babysitting my 21 month old nephew, entertaining my 8 and 12 year old daughters by taking them to the COSI...
- I'm going to bottom line the issue here...and I expect I know the answer...but....I hope all who are members here will chime in because I would like to hear all of your voices on the matter.TOPIC: How many of you who have had shunts consider your...
- Vertigo...haven't had it since last March when I was first diagnosed, but, I sure as heck have it now. I am in Ohio visiting family and since I haven't had Vertigo in such a long time, guess what med I left back in NY??? Yep, the stop-the-spinny...
- CONSTIPATION... Yeah...I said it. That ominous "C" word that nobody talks about. When we were babies, our parents talked about us having it. As parents ourselves, we speak of our children having it. But, as adults, out of embarrassment, nobody...
- As many of you know...last weekend I had a horrible episode in the ER which led to 7 attempted LP's and a final LP removing 32 cc's of CSF. All week I have battled what my doctor believes is low pressure symptoms, including some head and eye...
- Well, kids...I was back in the ER this weekend. Started off with pain in my left jaw to the point where I couldn't eat on Thursday and Friday of last week. Thursday I took the girls to see Zach Effron in "17 Again" at the dollar cinema. (GREAT...
- Just dropping in to give a quick update and tell each of you that I have been thinking of you all. So many of you had recently had shunt surgeries, (Jazzy, TJ, KS) and others have just been struggling with the disease. So, I know, it was a fine...
- Going to the hospital today to get a CAT scan to see if I have a hole in my skull leaking CSF into my sinus cavity. I will also be having a LP. I haven't had one done since March, and I haven't had one done when I haven't been in extreme pain and...