I really don't think this is MS related (just my opinion) but my sister in law has sneezing episodes, one after another, sometimes as many as 50 times maybe once a day. This started after she was grown up. Maybe your Dr. could give you something. Sorry this happens to you and I hope it stops.

Hey Monkeymom, you have a real sneezing problem, I have never heard of anyone with MS having this problem, but my husband and his son have weird sneezing episodes, but it is not related MS for them.
I agree with Xfireman and tell your Dr. about this and how to stop this excessive sneezing.

WOW! That sounds bad! I agree with the above comments...asks your doctor what's up with this? It's not a normal reaction!

I'm not saying it is or isn't related to the MS, but everyone with MS has different symptoms depending on your individual path of demylination in your own body, so personally, I tend to be on more of the "rare" side of MS symptoms (Epilepsy, Cerebelum Ataxia...Where your motor functions take a dive, from movement to speech, tremors), plus I get all the "fun", "normal" MS symptoms as well...tingling, numbness, vision issues, etc...

When I sneeze...It hurts REALLY bad! I never tend to sneeze lightly & it HURTS!

But I am ALWAYS of the mindset that...it could be worse!

So (I'm so sorry you go through this...I get the choking when I eat...mostly when I get seizure triggered, so I feel your pain & it's no fun at all) so thank you for reminding me that in life...it can always be worse & not to fret the small stuff.

Check with your doctor my friend & let us know how it goes & PLEASE PLEASE...DO NOT get a cold this season...I got one this season & it dang near put me at death's door seriously.

I don't want anything worse happening to you & the sneezing fits! YIKES!...I'll keep you in my prayers for a sneeze free day my friend! :-)

Take care,
Stay sane!

Sounds like you have "several" nerves that are "acting up/misfiring" & interacting with each other! When one fires...it fires the other...& they get caught up in a repetitious firing match (so-to-speak)! IDK?...I'm no Dr. However, I've been getting a crazy "nerve tingling/vibrating" way up in my nose for about a year & a half now. It triggers a sneezing response. It' doesn't act up too often...but boy when it does...I sneeze my head off!!! Drives me crazy! I've also had sinus/allergies my whole life...& "THIS" is different...I assure you! Please get back with us on any answers you find!? {[hugs}}
~tj

Thanks for your responses. I don't venture to the MS Wall very often, but, I am an "observer on occasion." My mother has a mild form of MS, with occasional bouts and flare ups. She is 63.

I have Secondary Intracranial Hypertension. I mention that I have the secondary form because unfortunately if I state that I have Idiopathic IH people imagine that I'm an enormously obese woman who merely just needs to lose weight to feel better and all sympathy goes out the window. I am not obese and unfortunately for me losing weight won't make my IH go away.

Due to the high pressures on my brain I also have CSF Rhinorrhea (i.e. the high pressures wore away a hole in the temporal lobe of my skull causing me to "leak" cerebral spinal fluid). This puts me at risk for meningitis. Two years ago I had brain surgery and they put a VP shunt in my brain, but, this hasn't helped much because due to the "CSF leak" my pressures never adjust in turn throwing the shunt off course. Therefore, I have a Fentanyl pain patch that I wear daily and I have a rather large protocol for pain relief should the patch not be enough...including a visit to the ER at least once a month for IV support.

I mention all of this because although I have secondary IH, they still aren't entirely sure what the primary problem is. MS has been linked to IH as a primary cause. If we can find out what the primary disease is and we can try to treat that than it may help my IH. Many white spots have been found on my brain, but, the Neuro-Opthalmologist who reviewed the scan did NOT think I had MS at the time. I would accept that as truth, if it were not that he were a REALLY bad doctor. LOL! (Really.) I saw him for over 2 years with IH symptoms and he never diagnosed me or ordered that proper testing because he didn't think I "fit the profile"...(I wasn't large enough.) But, as in my case, not everyone with IH is large. He told me that I "merely" had migraine headaches and dismissed me from his practice saying he could no longer help. (Really.) My mother experienced similar issues and wasn't finally diagnosed with MS until she was 60 years old. They now believe she's had MS since she was 40.

I get tingling in my hands and feet, my joints hurt even with pain medication, I have had a UTI for the last 2 years (they treat it and it comes right back), I have some trouble swallowing, I have muscle twitches and rigidity, mental fog, occasional visual blurriness, heat and cold intolerance, overheating (sweating)etc. My ANA always comes back positive with high titers, but, they have ruled out Lupus. And, of course, I have the "sneezing fit". My thyroid and hormones have also been checked and they are normal.

After I posted, I looked through your history and found that a few other people on your site had listed the "sneezing fits" as a similar symptom. So, I guess although it's not something you're experiencing it could be a possible link. It is also very possible that it's related to my CSF leak...so I will check into that.

I know that's a lot of info, so if you are still reading than God Bless you for sticking with me. I'm very sorry that you are all suffering from MS. Like IH, there is no cure...merely bandaids with little relief.

Much love,

MM3

MM3...I too have always tested high on the ANA Titer tests (4)...& I also experience everyone of the symptoms that you just mentioned in your post! I'm currently only Dx with Fibromyalgia...which doesn't seem to explain many of my symptoms. I've been in "limboland" for over 4 years now!! They tested me for MS (along with Lupus, SjS, Wegener's, Lyme, etc...) when all this crap started, 4 yrs ago...& all my tests came back normal...with exception of a "suspicious spot" on my C-spine & a herniated C5-C6 in my C-spine. However, not one Neuro has offered to ever re-do my C-spine...nor have I ever had a Spinal Tap. So...IDK if they've missed something or not? I also have Scoliosis, but they said it wouldn't be causing all these symptoms...nor would my herniated disc. OK...so, WHAT is??

I've been researching a lot about Chiari Malformations, Syringomyelia's, & Tethered Chords...due to my symptoms' list, Scoliosis & severe Migraines...at the back of my skull. I ALSO think that I had a CSF leak about 7 yrs ago...that lasted for about 2 yrs...off-&-on...following a nasal surgery. I couldn't figure out why all that "clear fluid" kept running out my nose, every time I would bend over...UNTIL I was researching my many neuro symptoms, 2 yrs later online. I asked my (then) ENT about it (as I was furious with my previous ENT who had botched my nasal surgery)...& he said "It sounded highly likely...but that it seemed to have healed itself by now" (then). I had agreed. I'm wondering if this CSF leak had caused some type of "abnormal pressure?"...as this was continuously mentioned in my research of Chiari & related conditions. So...IDK about any of this?...as it seems they would have found any 1 of these conditions in my previous MRI's. However, I keep reading where Neuro's & Radiologist miss these frequently. So...I guess anything is possible!??

http://www.upright-health.com/chiari-malformation.html
"Just recently, vascular surgeon Dr. Paulo Zamboni of the University of Ferrara in Italy has attributed the cause of multiple sclerosis to chronic cerebrospinal venous insufficiency or CCSVI. Recent studies have shown a correlation between Chiari malformations and multiple sclerosis and they share many similar signs and symptoms as well. This further solidifies the link between Chiari malformations, CCSVI and multiple sclerosis. It also lends further credence to a long recognized suspicion of a connection between multiple sclerosis and trauma."..........
Dr. Zamboni goes on further to discuss CSF blockages, pressures, & the effects. You may find it interesting...if you've not already researched it.

All I DO know...is that my neuro symptoms continue to become more complex & disabling year-by-year. Guess they're waiting till I end up in a wheelchair?? I had an episode last week where I could hardly walk...legs wouldn't work!! This is getting crazy scary at times! Hoping you find answers my friend! You are certainly NOT alone!! {[hugs}} ;)
~tj

I don't necessarly get that but when I can't swallow and I sneeze afterwards I start choking. Also my legs vibrate terribly when I sneeze but I've had ur symptom aLthough with this disease anything is possible. I hope u feel better =).

I just have to cross my legs when I sneeze!!!!!!!!!!!!!

ALL I CAN SAY IS GOD BLESS YOU!

Silly nerves....sounds like it could be a nerve thing to me too....not to mention MS folks can have swallowing issues...(could be MS or could be NOT MS...who knows)

PS good luck with the dr. they don't always know either...if you have one who is not afraid to say they don't know...you're lucky!

I know this is an older post... but PLEASE PLEASE let me know if you've found anything out about your sneezing issue. I have that EXACT issue and it not only hurts but it sure sucks to choke and, pardon this, snot all over the place cause you can't stop sneezing, swallowing, choking. I asked my Dr and she looks at me like I have 2 heads... I would REALLY appreciate ANY info. Again I know this is an old post but I cannot seem to find anything online about this issue.
I do have a cyclical vomiting diagnosis and wondered if all the vomiting had caused something to happen over the years... but now reading your post I'm back to not having a clue. IF you can, IF you read this, I dunno if this allowed but u can reply here or even my email. Which is irorschach at the hot male com thing if you get my drift. I don't wanna break any rules there... I'm also desperate for an answer tho lol.

Try writing the poster directly. . .

I have a different problem i can't sneeze! I feel it coming on and want to sneeze but something happens and I just can't seem to sneeze! i can't remember the last time i actually was able to sneeze? I is horrible when you know it is there an you can't i have tried looking at the sun and pepper and nope no sneeze!!!!

Hi mm3,

I have this same sneezing problem but I don’t have ms but fibromyalgia. Not sure if this helps any but I am glad I am not the only one with this annoying problem. It’s just happen again and now sat in bed with a sore throat. Let me know if you found out anymore on this.

bean1bean1

I have this same issue. Have you asked your doctor about it yet? When I try and swallow I choke and can’t breath, it then bring in another sneeze and again I can’t swallow but choke