deegran

Ugh. 8 days late. So let's see, 7 + 8 = 15 days between infusions. Anyways I'm all infused now and feeling happy about that.Beautiful morning. We can see all the way to the Coast Range from our home...

I found out I'm going to be at least a week late getting my infusion. My head exploded.

Today I am supposed to be getting my infusion. Although that isn't my favorite thing to do I really feel like the infusions are helping me. Anyways, the company that sends the Aralast to us got mixed...

Father-in-law's birthday is the 31st. We're having breakfast with him on the 1st of August. Then he is invited up for breakfast with Brad (son) and Wendy (daughter) on the 3rd. Both of their...

Wow, it's been too long since I wrote an entry. I'm going back to the happy stuff. I need that right now.Pool. Yay. Bob put up our pool and I have been walking around in it and swimming a bit. It...

Oh, wow, there were lots of phone calls, emails, and filling out of paperwork to get back on the infusions. But it is taken care of for at least 8 more months. I have been told I need to have my...

Oh wow, it's been 6ish weeks. That's too long.Okay, well going on 3 weeks I haven't gotten my antitrypsin infusion. It is supposed to be 1 per week. Ugh. More funding issues. Too sad and complicated...

Time to write. About happy stuff.The nurse is doing my alpha-1 infusions now. My hands don't look like I've been in a boxing match anymore. She'll be here tomorrow. Having gone without the...

I was without the alpha-1 antitrypsin for 3 weeks. That gave my bruised hands time to heal. My wonderful husband was doing the IV infusions. I'm not sure what changed, but it went from 4 or 5 tries...

Sometimes it seems sooo hard to stay in a good and happy balance. I was going to say with this disease, but it's true with all of life I think. Right now though I'm struggling with the disease part...

Ha, it's my birthday! 56 years today. Happy birthday to me.We went to the pulmonologist yesterday. 6 month check-up. They did the pft and it seems I have lost 1% of my lung function. Down to 31%. I'm...

2 good breathing days in a row! Gotta like it.My baby got her blood tested. She is alpha1 antitrypsin deficient. Her genotype is SP. That's not good. MM is best, SS is not good, PP is very bad. She...

The house is super clean.Puppy has been slipping on the wood floors lately. We are concerned about her hips. I guess she's getting older. That's not happy. Happy is having Puppy around.My sister's...

Today is Tuesday. Bob is working. He is getting in great shape from climbing the mountains with all his equipment. I miss that a lot. Being with him, climbing mountains and being in shape. I feel...

Hello Happy About. Today has started GREAT.I'm not gonna lie. Sunday the 23rd was a rough day for me. Bob and I just layed low and watched football pretty much all day long. Every year that day...