Back on Aralast
Oh, wow, there were lots of phone calls, emails, and filling out of paperwork to get back on the infusions. But it is taken care of for at least 8 more months. I have been told I need to have my weekly infusions for the rest of my life. Anyway, I've had two. And I am feeling much happier. The nurse who gets the IV started said I probably felt a lot of weight lifted off my shoulders. I had not thought of that, but I do believe she is right.
My baby brother and his wife are coming to visit today. He has this awful alpha-1 antitrypsin deficiency also. I have probably said this before, but I was the first one in my family to be diagnosed. I then went on a facebook and personal blog campaign to encourage the rest of my family to be checked. Well, my brother found out he also has the defunct gene, the PiZZ one. He has been getting infusions for about 5 weeks. I'm glad they are coming to visit.
When our Puppy dog gets mad she won't look at you. She got mad at Bob last night. It was pretty funny to watch her not look at him and to watch him trying to get her to look. Ha.
Those are my 3 happy things today.
My baby brother and his wife are coming to visit today. He has this awful alpha-1 antitrypsin deficiency also. I have probably said this before, but I was the first one in my family to be diagnosed. I then went on a facebook and personal blog campaign to encourage the rest of my family to be checked. Well, my brother found out he also has the defunct gene, the PiZZ one. He has been getting infusions for about 5 weeks. I'm glad they are coming to visit.
When our Puppy dog gets mad she won't look at you. She got mad at Bob last night. It was pretty funny to watch her not look at him and to watch him trying to get her to look. Ha.
Those are my 3 happy things today.
Replies
Dee, I am so so glad the burden has been lifted for at least the next 8 months, and what point can you start the process again for beyond that? You hang in there, I know that this process will help you feel and act better, it gives you a lift in many many ways, but I also think your actions in helping your family awareness is one of the greatest benefits. Without you and the efforts you and Bob have made, many in the family may not even be tested and we all know that\'s importance. You keep at it sweetie, thank you for the constant hugs, (god i love them), and the encouragement your always full of. Please take care, Bill