Oh wow, it's been 6ish weeks. That's too long.
Okay, well going on 3 weeks I haven't gotten my antitrypsin infusion. It is supposed to be 1 per week. Ugh. More funding issues. Too sad and complicated for here. My advocate said that she hates her job when she works on cases like mine. So, anyway, can't really breathe easy, in more ways than one.
You know you have breathing problems when you start counting the steps from your kitchen sink to your refrigerator to your coffee maker to your mug cupboard. It's about 6. Can I cut it down to 5? Errgh.
So happy. Our daughter is getting a little golden retriever puppy today. They've had her picked out for a couple of weeks now. Her name is Lilly. They're coming to visit in June and they're bringing Lilly. I am super excited to meet her. I've seen lots of pictures and she is adorable! Is anything cuter than little kids and puppies playing together?
Our grandson E-L-L-I-O-T (as he now calls himself) will turn 5 while here. He is part of Lilly's people. So we need to have an Elliot party. Wendy, Elliot's aunt, and Joni, Elliot's mom, are planning the party. Nice. It will most likely be at the lake. We shall see . . .
Well, our Puppy just barked so I should go see what's going on. Probably some crows or hawks flying too low. It's her job to make them fly high when flying over our property. She takes this job quite seriously.
Happy, happy, happy.
Okay, well going on 3 weeks I haven't gotten my antitrypsin infusion. It is supposed to be 1 per week. Ugh. More funding issues. Too sad and complicated for here. My advocate said that she hates her job when she works on cases like mine. So, anyway, can't really breathe easy, in more ways than one.
You know you have breathing problems when you start counting the steps from your kitchen sink to your refrigerator to your coffee maker to your mug cupboard. It's about 6. Can I cut it down to 5? Errgh.
So happy. Our daughter is getting a little golden retriever puppy today. They've had her picked out for a couple of weeks now. Her name is Lilly. They're coming to visit in June and they're bringing Lilly. I am super excited to meet her. I've seen lots of pictures and she is adorable! Is anything cuter than little kids and puppies playing together?
Our grandson E-L-L-I-O-T (as he now calls himself) will turn 5 while here. He is part of Lilly's people. So we need to have an Elliot party. Wendy, Elliot's aunt, and Joni, Elliot's mom, are planning the party. Nice. It will most likely be at the lake. We shall see . . .
Well, our Puppy just barked so I should go see what's going on. Probably some crows or hawks flying too low. It's her job to make them fly high when flying over our property. She takes this job quite seriously.
Happy, happy, happy.
Replies
Dee, I do think of you and Bob on a regular basis, and the struggles you face on a regular basis. But I am so proud of how you hang in there, how you keep a positive attitude. I know sometimes the issues become almost unbearable, but I also know you hang tight even in the difficult times.Hopefully something will shake loose so that you can get your medication on a regular basis in a timely way.
Dee, sometimes I won\'t go from here to there because of the steps involved so yes my dear I know exactly how you feel. But I am sure that like me you have good days, where it can be 8 steps away and that\'s not undoable, so look for those days.
I hope that E L L I O T\'s party is a grand time. Please take care, Bill