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- In my weekly search for new research on MG, I ran across this study fully readable at this site. https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01802-4 The researchers looked at levels of stress, depression and compared that...
- As we hear promising efforts to create a vaccination for Covid-19 being available in 2021, the question comes up -- should we take a vaccination while on immune suppression. I am not getting into the discussion of vaccinations in general, as I am...
- I got an email about a research study survey on how Covid-19 affects those of us with rare diseases. I got the email as I am on the MG Registry. An NIH research study. https://www.rarediseasesnetwork.org/covidsurvey The novel coronavirus...
- A panel of experts on myasthenia gravis and Lambert-Eaton myasthenic syndrome pulled together a consensus document, based on what is known to date, on how to manage these neuromuscular diseases during the COVID19...
- https://www.medscape.com/viewarticle/930271 Patients with myasthenia gravis (MG) who are treated early with the monoclonal antibody rituximab (multiple brands) achieve remission sooner than those treated later in the disease process, new...
- With the virus and everyone being advised to stay away from places we might get exposed to it, others in our society are getting a hint of what it is like for us most of the time we are on immunosuppresants. When I first was diagnosed in 2012, I...
- Something I have advocated for a long time is using a sleep breathing machine to help with MG. I have a CPAP and when my breathing was hard with MG, I used it at night as well as for times during the day. This case study talks about using a...
- Back in 2012, high on Prednisone, I wrote and posted a poem to this forum: to all of my MG friends I share my poemA Visit from MG (with apologies to Clement Moore)Twas the night before Christmas and all through the house,Not a creature was...
- One of our members who was active for several years passed away a few months ago. His obituary is at https://www.conner-westburyfuneralhome.com/tributes/Kerry-BunnSr He was an upbeat person who often posted about his attempt to measure...
- https://myastheniagravisnews.com/2019/07/22/certain-cholesterol-lowering-statins-may-increase-risk-of-mg-who-based-study-suggests/The research link says statins may be related to MG in a small number of people (4.2% of older men). It suggests a...
- A research study says that the two biggest reasons MG patients have problems are infections (30%) and medications that may worsen MG (19%), in particular, beta blockers. We can understand infections as a part of our immune suppression...
- From the Internet this week:Researchers with the University of Alberta recently identified a unique biological marker for myasthenia gravis that might be used for a diagnostic test and to predict the course of the disease. It may also have...
- Clinical Trial for people with MuSK Positive Myasthenia Gravis (MuSK MG)Currently, there is no FDA approved medication for MuSK MG. Give the gift of participation in a clinical trial. By volunteering for a clinical trial, you are helping researchers...
- Jameela Jamil Nails the Exhaustion of Behaving 'Perfectly' to Manage an Autoimmune DiseaseComments by a person who is tired of trying to live in anticipation of problems from her autoimmune disease. I think this describes MG...
- The Myasthenia Gravis Patient Registry is an active database of persons with Myasthenia Gravis (MG), developed for the purposes of research, treatment, and patient information. The MG Patient Registry is a confidential and patient-driven research...