Rhanson
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- I got setup, password updated and think I have figured out how the new daily strength MG works, so am testing a post. It seems that the list of posts is not in order of dates nor in order of last commented on, but haven't quite figured it out yet....
- A Phase 3 clinical trial, called REGAIN, assessing Alexion Pharmaceuticals' Soliris (eculizumab) for the treatment of refractory generalized myasthenia gravis (gMG), an ultra-rare subset of MG, failed to achieve its primary objective but did hit...
- I went into full drug free remission from MG with my last dose of prednisone on April 1, 2013. I was diagnosed with it a year earlier, rapidly went from ocular to general,went through the hospitalization early on for breathing problems, went on...
- Fascinating article about training your immune system that may show you can learn an immune system response that will take the place of a harsh drug. http://www.theatlantic.com/health/archive/2016/02/conditioned-immune-responses/461985/
- Some research on transplant recipients being more likely to die from cancer is applicable to us, as the thinking is that the immune suppression needed to prevent organ rejection allows cancer to grow. The message in this for MG folks is we need to...
- Finally found a place where med prices are online. This link is for pyridostigmine -- generic MestinonNameMfr.30 tablets50 tablets100 tabletsGeneric Alternative:PYRIDOSTIGMINE BR 60 MG TABLETGLO$18.9930 tabs $25.3650 tabs$39.48 100 tabs Of...
- A study confirms what we probably all know already -- MG comes with many additional illnesses. The LInkhttp://www.hcplive.com/medical-news/-myasthenia-gravis--comes-with-comorbidities from the study: the most common association being...
- Interesting article that shows DNA variations in folks with MGhttp://healthinsurancefact.org/index.php/2015/10/15/genetic-research-reveals-possible-new-targets-for-treatment-of-myasthenia-gravis/
- Stumbled on to this year of MG blog. Interesting if you have time to do some readinghttps://365daysofmyasthenia.wordpress.com/
- I have been trying to find details about the time it takes for our muscle receptors (destroyed by our bad antibodies) to be replaced. I have assumed it is pretty fast for IVIG and PLEX to work so quickly but until now didn't find a reference. ...
- A year ago, one of our Myasthenia daily strength friends passed away after a struggle with MG caused by cancer. She joined this group in 2012 and wrote eloquently of her attempt to get a diagnosis, treatment and we watched her struggle until death....
- An article http://www.startribune.com/when-doctors-get-it-wrong-misdiagnoses-are-getting-a-closer-look/323328471/ says that doctors misdiagnose patients 5-15% of the time and gives some of the different reasons why. Worth reading I think,For a...
- I was diagnosed with MG in May 2012. Since then I have this week first run into another person who actually has MG to talk to in person. He has had MG for about 1 year, is about my age (I am 68) has it mostly under control with prednisone and is...
- I was diagnosed with ACHR positive MG in May of 2012. It went from mild to crisis in a few weeks and then over a year I got it under control and was one of the 15% who go into remission. 25 months later, I am still MGless due to luck rather than...
- Found this letter on the internet at http://www.themonitor.com/opinion/letter-on-myasthenia-graves-disease/article_c477d9d2-0be3-11e5-9f1b-43f1c0e30037.htmlIt is a letter to the editor explaining MG. It is a good summary and I think we might do...