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- In 2012, I began my experience with MG starting with double vision, then bulbar and general so that in about 2 months I went from no MG to in the hospital in crisis. I did the mestinon and prednisone route for about a year before tapering...
- In 2012, I began my experience with MG starting with double vision, then bulbar and general so that in about 2 months I went from no MG to in the hospital in crisis. I did the mestinon and prednisone route for about a year before tapering...
- Happy Holidays to all of you. Hope 2024 brings a good year. My own experience with MG ended 10 years ago when I went into full remission with no return of MG since. At 77 years old, I am hopeful that this is a permanent remission. Russ Hanson
- Hope you have a nice holiday season. Here in NW Wisconsin, we are having a great deal of snow, cold and wind and having a hard time keeping the driveway open today -- it keeps drifting shut. It has been 10 years since I was first diagnosed with MG...
- The vaccine may not help all immunosuppressed persons says this news video. The bottom line is -- get the vaccine, but be careful as you may not get antibodies to develop. They also speculate that a third dose or stronger dose may be...
- https://journals.lww.com/neurotodayonline/blog/breakingnews/pages/post.aspx?PostID=1075 “Certainly for people with ... neurological diseases, the risk of getting a problem from the vaccine is far outweighed by the risks of getting a serious...
- I found this article on myasthenia gravis treatment and it included a timeline and history of treatment. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6690491/ The 1930s are the variations of what we take as Mestinon now. The timeline...
- https://myastheniagravisnews.com/news-posts/2020/10/13/1st-person-dosed-phase-1-2-trial-nmd670/The website says this:"NMD670 is an oral compound designed to inhibit a muscle-specific chloride ion channel found in skeletal muscles — those...
- About the same time, I was diagnosed with MG, I also was diagnosed with sleep apnea. In my mind they seemed part of the same problem. This article says that sleep is a problem with MG. I often used a CPAP breathing machine to assist me when...
- Women with myasthenia gravis (MG) have a diminished quality of life compared with male patients and are particularly affected by the number of additional diseases (comorbidities) they experience, a new study from China reports.They also have a...
- A review paper of all of the medications and treatments that may interfere with MG is at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7457047/pdf/fnmol-13-00156.pdf It attempts to explain why these are a problem and where in our neuromuscular...
- The Myathenia Gravis Foundation is sponsoring an art contest Submit a digital photo of an original piece of artwork that you created yourself (a painting, drawing, graphic design, …any medium you want) that tells us what the Myasthenia community...
- Every week I do a google search limited to the previous week on what new has shown up on the internet on MG. This week I found a review article on Myasthenia Gravis that talks about ocular mg (OMG). Although most of us probably don't need...
- I am always leery of treatments that are very profitable for clinics and hospitals. And IVIG is a huge profit center for those places that do it, at least in the USA. Does that make a difference in what your doctor prescribs for your...
- https://www.eurekalert.org/pub_releases/2020-08/mcog-pwr081820.phpAs a retired medical researcher, I like to see what is coming out on MG research too. In 2012,2013 two new antibodies were discovered and associated with MG beyond the ACHR and...