Rhanson
Status:
Mood:
Ok
Offline
- https://www.pinterest.com/snusan/myasthenia-gravis/?lp=true
- Most medical folks including First Responders don't know about MG. Here is a video that explains to them what they should do if we are in trouble. I think it is helpful for us to see too. It includes which breathing tests are useful with...
- The author has had MG since age 2. She gives updates weekly in the local news source as a columnist. I think they are interesting. Her latest is IVIG has quit working and she is trying rituxamab. http://www.dailycal.org/author/skhetpal/
- There is a website that tries to keep up with MG news. It seems like a good place for information. https://myastheniagravisnews.com The article link below is advice to patients with MG in a world where most medical professionals don't know...
- Some times we find a website that summarizes MG. This seems reasonably complete and not too technical in the first part and quite technical in the second part, so both new folks and those of us who have tried to delve into the details of MG can...
- A research study on plasma exchange shows that if one is ACHR+ it is likely to work better than if not. PLEX or TPE is essentially blood filtering -- removing plasma with a machine and then replacing it with other fluids or other...
- This article in the New Yorker would be funny if it weren't so true! Where we get our health information is, in my opinion, very likely to determine how well we do with our...
- "A new explanation for why males are less susceptible to these disorders than women."https://arstechnica.com/science/2018/02/testosterone-may-protect-men-from-autoimmune-diseases/After having MG for 8 months, additional tests showed that I had...
- Happy New Year from the Myasthenia Gravis (MG) Patient Registry! The Winter 2019 Update survey will be available on-line starting Tuesday, January 15th. This update includes one new content area. You will receive one additional email when the...
- A research study shows that pyridostigmine (Mestinon) helps with chronic heart failure. Pyridostigmine use in heart failure was associated with beneficial effects in cardiac remodeling and with improvement in ejection fraction in animal models, and...
- Research Article http://practicalneurology.com/neurologywire/2018/10/12/thymectomy-may-be-effective-only-for-some-forms-of-myasthenia-gravisAlthough randomized trials demonstrate that treatment with thymectomy has benefits for patients with...
- The latest newsNearly 800 dietary supplements sold over the counter from 2007 through 2016 contained unapproved drug ingredients, a new analysis of US Food and Drug Administration data found. More than one unapproved pharmaceutical ingredient was...
- https://www.newsweek.com/doctor-patient-visits-1035514 The link above says that a study found that when you talk to a doctor, within 11 seconds from start you will be interrupted by the doctor. "In primary care visits, 49 percent of patients...
- A positive story about MGhttp://www.gophersports.com/sports/w-hockey/spec-rel/011818aaa.html?wappref=std
- This forum was quite active until about 2 years ago when dailystrength greatly revamped the "look and feel" of the pages. Then it dwindled down greatly as folks found new or easier places to converse. Eventually this site smoothed out and it works...