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- An estimate for 3 different treatments for refractory (treatment with the normal immune suppressing meds doesn't work) MG. Rituximab vs PLEX vs IVIG Drug costs were determined based on Medicare average sales pricing as of April 2017 (Rituximab,...
- If you are interested in a young woman's experiences living with MG, this blog is very good. She posted every day for a year. It started in 2015. The blog continues, but to start at the beginning you have to navigate the site backwards by...
- http://jamanetwork.com/journals/jamaneurology/article-abstract/2586257Conclusions and Relevance Rituximab therapy appears to be an effective option in patients with refractory AChR+ MG, who were observed to have a durable response after...
- A research article in the New England Journal of Medicine says that an MG patient with a single drooping eyelid will have the other one droop if the first one is held open. Sort of an odd article, but it is explained that if one eyelid droops,...
- A report on the difficulty of diagnosising MG with other autoimmune diseases. http://www.sciencedirect.com/science/article/pii/S1090379817312096"This case illustrates a delay in the diagnosis of myasthenia because initial eye movement abnormalities...
- Some research that talks about MG and another autoimmune disease and suggests that multiple autoimmune diseases should be tested/watched for in folks with MG. The article is a description of 16 patients who have both problems. The treatment is...
- As my doctor suggested when I started taking high doses of prednisone for MG, a side effect might be cataracts. Last November and December I had cataract surgery. It went well, and it was great being able to see decently again. The complete...
- Many of us start with a blood test for MG symptoms. Here is a little more info about that. AChR antibodies hinder the action of acetylcholine, a chemical (neurotransmitter) that transmits messages between nerve cells. The antibodies do this in...
- Below is the doctor's notes from my first neuro visit for MG May of 2012. May of 2012 double vision started. The eye doctor I visited for the problem did the icepack test and told me he was 80% sure I had myasthenia gravis, ordered a blood test...
- New England Journal has an short piece on MG diagnosis with icepack to eyes. That is how I was originally diagnosed too. If I were an MD my testing for MG would start with the icepack (assuming the symptoms were ocular) and then I would give the...
- This is Thanksgiving week in the USA--being thankful for what we have and can do and appreciating the good in our lives. Hope all of you are improving!There is a test that many doctors use to give us a score on our MG disease level. You can read...
- A group of MG specialists created something they call International consensus guidance for management of myasthenia gravis Want to see if your neuro is following the guidelines -- or read them yourself, check out the...
- An interesting research article at http://www.clinph-journal.com/article/S1388-2457(16)30529-6/abstract Says that if one has acute (meaning sudden) onset myasthenia gravis, the RNS (repetitive nerve stimulation) test often does not show...
- One of our members passed away 2 years ago, Elinor Scott. She had MG as a side effect of undiagnosed cancer. The cancer took her about 2 years after she joined this group. A lively, kind, vivid, well-spoken person we old timers miss....
- MG is a disease that messes up the connection between our nerves and our muscles -- the neuromuscular junction. Researchers have made a model of this on a computer chip https://techcrunch.com/2016/08/04/muscles-on-a-chip/ It is part cells and...