Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
i had gone tru the net, and start verifying what exactly is going one, the list never ends
and i started to relay the findings and how to fact finding by relay diferents lplaces that could provide good info.
some mg.s d'int like my expalnation and the way i was trying to force info to them
all meds will work diferently with each of us as we are totaly different one than the other, but the fact reamain that we all have mg, different classification,
but the reaction of meds is alive on each of us
gabapentin. inmuran, cellcept,antibiotics, beta blokers, statin will exacerbate mg.
and itis up to us before taken what is given to force the issue with your neuro and your endo, as the result oh happenings will be only on our soulders and nobody else.
beleive me that if they where any meds safer than mestidone and prednisone, i would be the first one to vhange my druggs. but iam a person whom likes to minimize the effects of my desease
SO I THANK YOU RHASON, for bringing up this subject, maybe now people will realize that much searching is needed and willing to accept sujestions as it is the only way that we will beat this disastreous and crazy desease
best of luck to all
Andre
so ranson thank you for bringin this up
https://wiki.umms.med.umich.edu/plugins/servlet/mobile?contentId=66716050#content/view/66716050
Thanks
Peter
As you might be aware I was recently diagnosed with Inflammatory Bowel Disease (IBD or Crohn's Disease) to add to my MG. The diagnosis of Crohn's followed one of Diverticular Disease a little over a year ago. However as things panned out (pun) over the past year my 'symptoms' got progressively worse, but it was proving difficult to get any treatment as the hospital considered they had a diagnosis...
My GP then retired and I saw a new doctor. Fresh pair of eyes who realising that I had MG and was taking both Prednisone and Azathioprine put two and two together. As it happens those two medications are also extensively used for the treatment of IBD. Perhaps that MG treatment was masking the other set of tests? Bingo, these thoughts were relayed to the hospital and within one week I had the tests and numerous biopsies. Seems confirmed albeit the biopsies will have the final say.
Two points here I guess. The medication is the 'obvious', but the knowledge of the GP in his thought process is the thing that encourages me - that takes both experience and training. I don't have either.
Peter
I take Medications to quiet Blinding facial pain caused by trigeminal neuralgia. The pain alone could cause an MG exacerbation.
There are a few medications we can never have (those that have black box warnings). Any others are to be used with caution.
I noticed that the heading of the contraindication list says “drugs to avoid in a myasthenic crisis. Is it also a list of medications to avoid when not in a crisis?
For example, some MG patients seem to be able to take gabapentin with no problem; however, it made my MG symptoms, especially the dysphagia, worse.