Rhanson
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- Just finished listening to some of the 2014 MGFA Conference speakers online http://myasthenia.org/communitysupport/MGFAConferenceVideos.aspxDr. Daniel Drachman, one of the foremost researchers in MG, begins his talk expressing his opinion that MG...
- Two new trials for those with MG. Clinical trial means trying out a new treatment to see if it is safe and effective. Rituximab: The purpose of the study is to find out the effect and safety of a new use of the drug rituximab in myasthenia...
- The spring newsletter of the MG Association of British Columbia has some interesting articles including a discussion of insecticides and MG, eyelid surgery, botox and much more. You can find it at ...
- I am celebrating two years of full remission from MG this week -- the last prednisone I took was at the end of March 2013. May 2012 I was diagnosed with ACHR + myasthenia gravis and after starting with double vision and ocular mg, within 3 weeks...
- I just completed the 2015 questionnaire -- my second year of filling it out. I think it is for a good cause--helping treat MG. The Myasthenia Gravis Patient Registry is an active database of persons with Myasthenia Gravis (MG), developed for the...
- We complain a lot about our doctors including their unwillingness to listen, hesitation in diagnosis, seeming indifference and so on. But, I ask, are we good patients? And what is a good patient?The US medical "system" -- where each patient visit...
- to all of my MG friends I share my poem A Visit from MG (with apologies to Clement Moore)Twas the night before Christmas and all through the house, Not a creature was stirring, not even my spouse.The Mestinon was laid by my bed side with careA...
- The Family Practice notebook website is a summary lookup for various diseases for family physicians The site below is the MG outline Most family doctors are not experienced with MG, so head to the web to find out more. This is one of the places...
- USA -- The Jobs Accommodations Network website gives a lot of info about working with a disability and the responsibility level of employers. Included is specific Myasthenia Gravis information. http://askjan.org/media/MG.html
- A few cases of MG may be caused by statins. Although there is not a cause-effect direct link--it could just be coincidence, the authors seem to think their might be a mechanism of statins causing autoimmune problems....
- Six weeks ago our friend Elinor A Scott-Sutter died from cancer. She recorded her struggle with MG on dailystrength.org and we all watched her try to get diagnosis, treatment and continue with her active life. She wrote so movingly in her journal...
- An interesting article http://www.coppellstudentmedia.com/2014/10/24/bass-faces-myasthenia-gravis-seeks-treatment-in-russia/?utm_source=rss&utm_medium=rss&utm_campaign=bass-faces-myasthenia-gravis-seeks-treatment-in-russiaFor new college student...
- There is a poem in the New Yorker -- Thymus-- our favorite organ. http://www.newyorker.com/magazine/2014/10/20/thymus
- Some medical satire that as a retired scientist, I find both funny and too true. http://www.newyorker.com/humor/borowitz-report/fear-ebola-outbreak-make-nation-turn-scienceNEW YORK (The Borowitz Report)There is a deep-seated fear among some...
- Want to read the doctor's update on MG? This is probably the minimum you should insist your family doctor read about MG before you allow them to treat you. Remember, the average doctor knows very little about MG and unless they choose to educate...