jandrew1032
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- Just curious if anybody knows much about monocytes or has had elevated levels? My son, 17 months post BMT has had elevated monocytes often since transplant, but recently they were 1.8 (0.8 is the high end of normal). His BMT doctor is not concerned,...
- Sorry it has been so very long! Life has been busy in a good way. Julian was 1 year post BMT in October--can you believe it!? No signs of AML and 100% donor. I do have a question for the post BMT folks though. Julian began having some foot pain...
- Hello all,Julian has been home for about a month now and has been doing well. He has had weekly blood work since we left Minneapolis. While we were in MN, all of his counts were awesome and mid-range. WBCs were 7-9 range most of the time, ANC...
- I wanted to share with all of you that Julian's "100 day" BMB and LP are in. He is 100% donor cells for the third time! There is no evidence of leukemia! I am so incredibly happy to be able to say that! We will follow up with his doctor tomorrow,...
- Julian has Adenovirus. His stool tested positive for it after he began to have severe diarrhea about a week ago. He has been back in the hospital since Monday, because he became dehydrated. He is still here, I believe because his diarrhea is still...
- I have been hearing more about alternative treatments and such from a fellow cancer mom. I am even planning to start using some essential oils for Julian. We have also done a "detox bath." Those are relatively easy things to implement and I feel...
- Merry Christmas everyone! I have been absent for a while--just busy. It is hard to believe how fast the day goes with the two little ones! Julian has been doing very well. His blood work is fantastic--far better than I would have expected...
- Hello all,It has been a while, but Julian continues to make strides post BMT. He had his first bone marrow biopsy last Friday. Results came back 100% donor cells! One of the cords already won out. He also shows no evidence of disease. Great start...
- Julian is day +12 today. From a clinical standpoint, he is doing well, but from a mother's standpoint, he is really having a rough time. He is in pain almost all the time. He complains about his feet and his head, both of which we believe might be...
- Julian is experiencing a lot of very uncomfortable symptoms here in the past couple of days. Everything began on day +5. He had a seizure and spent a night in the PICU. They believe that the seizure was actually from a fever spike. Thank goodness,...
- Hello everyone,Julian is day +1 today. He had a double cord blood transplant yesterday. Other than some pretty severe nausea over the past 2-3 days, he has done very well so far. The doctors have told me to expect fevers, mouth sores, mucositis,...
- We finally have a tentative plan. I am confident that it will go off without a hitch, so I am posting this before I get the final results from his tests tomorrow. It sounds like Julian will be admitted on October 8. He will begin Keppra that day (an...
- Hello everyone,I am curious how long most of you waited between your last chemo and your pre-BMT chemo/radiation? Julian is 2 weeks out from his BMB that showed him to be in complete remission, and he is most likely going to start pre-transplant...
- Hello all,Sorry that I have been AWOL for a while. Julian came home about a week and a half ago, so whenever I am not working, I am playing with the kids. I wanted to give a quick update though. Julian had his bone marrow biopsy last Monday. We...
- I am wondering what others' experiences have been with blood counts recovering after chemo? My husband is worried because Julian is on day 30 of this new induction, and counts still are not stable. His anc has been .1 for three days, but platelets...