bny806
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- So, I have read about Grottons papules, and didnt' think that I Had any.. but then this week, I am having quite a flare.. My joints are killing me, but on the palm side of one of my fingers it is SO tender around the joint and there is a little hard...
- Do any of yall have hip pain with all of this? I have had wrist and knee pain all along, with elbow and clavicle pain when things get really flared.. I have had a flare of everything including my GI issues, so haven't been absorbing my plquenil...
- hello! I am still a mystery, though I get IVIG for an autoimmune issue - muscle weakness, numbness, horrible joint pains, rashes etc.. anyhow I have many symptoms of Lupus plus a family history.. my ANA Is always quite elevated..but the lupus panel...
- Hello! I am still a mystery, but basically have all the symptoms of hyperthyroid since having my son: fast heart rate, palpitations, muscle weakness, eyes bothering me/gritty- they look different, frequent bowel movements, insane hunger,...
- If I get a skin biopsy, would that be as conclusive as a muscle biopsy? After my awful rheumy apt with the new dr.. It would be nice if I didnt' have to depend on a rheumy for figuring this all out! I am supposed to see a dermatologist for this...
- Not sure if we have talked about this before or not, but does anyone else have tongue issues? My tongue has bled when I brush it since this all started 2.5 years ago.. it is always just a little sore (B12 levels are normal and no anemia).. ...
- So, I finally had my rheumy apt (with a new rheumy since mine had changed practices).. He was awful!!!! He was in the room with me for an hour, but was just copying labs down from my old med records - not listening to me or anything..I asked if he...
- Hello all.. I have a family history of lupus and after my son was born my body revolted big time...ended up in the hospital with all sorts of problems (couldn't breathe, muscle weakness, numbness tingling etc etc.).. result is I'm a mystery.. ...
- This rash is driving me nuts... Its mostly on my shoulders chest and neck and a little on my hands... I tried taking benadryl, as it itches so badly, i figured it would help, but didnt' seem to make a difference (except it did knock me out- so guess...
- anyone else have a tongue that bleeds with this? Mine is dry at times, but not bad.. not anything I'd really even think to mention.. but it is sore.. it's sore most of the time and it will bleed when I brush it everytime (it has for 2 years).. ...
- As i sit here and my IVIG is wearing off.. I have this AWFULLY itchy rash going on on my shoulders, arms and face... not a lot of fun.. but I was wondering.. do any of ya'll have a shakiness when you grab something and bring it back to you (when...
- I am still a bit of a medical mystery, but my sibling has crohns and I have lots of weird sympotms,... signs of malabsorption.. (no crohns noted on endoscopy or colonoscopy 2 years ago, though esophagitis and gastritis were present). Does anyone...
- I have a problem, and it's really not enjoyable.. before I landed in the hospital 2 years ago and started getting IVIG, when I was sick, I had wt loss with the muscle weakness and some GI issues too... Everyone thought I had post partum...
- Does anyone else ever get this sensation that their ab muscles are tearing away from their ribs?? I have weakness all over- but proximal and trunk weakness is the worst...when my symptoms flare it feels like my ribs and stomach muscles are going to...
- I am in diagnostic limbo, and have been for a couple of years now - but I have diffuse muscle atrophy, weakness, triple furrowed tongue, some sensory stuff as well, heart rhythm abnormalities, GI disturbances and more - but my EMG's have always been...