Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Not sure if we have talked about this before or not, but does anyone else have tongue issues? My tongue has bled when I brush it since this all started 2.5 years ago.. it is always just a little sore (B12 levels are normal and no anemia).. anyhow last night I was eating some cracker dip (same brand as I always eat).. and my tongue felt awfully sore.. I thought it was same as usual until it got way worse, became numb and I realized it was swelling - yikes... so I took benadryl and it eventually resolved.. not sure if this we just an allergic reaction (never had anything like this in the past).. or if it was my extreme irritation from my baseline sore tongue.. i have had swallowing difficulties when my symptoms are exacerbated all along..
I have a sore tongue/mouth every once in a while. I don't get any advanced warning, it just all feels sensitive and sore suddenly. I think it might be stress related; I'm also allergic to olive oil and garlic. So if I make a mistake and eat either of those, my mouth flares. Also, since I've begun taking steroids for my PM, my teeth have become slightly sensitive. I had to switch to sensitive toothpaste, and it helps soothe my mouth/teeth a bit. Swishing with mild Listerine also helps whenever my mouth is sour.
Purr,
Buttercup Kitty =^.,.^=
ARe you on Methotrexate?? do you need Folic acid to counter that??
I find the nightshades give me trouble and any artificial colors and my tongue will go wacky..
Good luck, but you need to let your doctor know. I keep an epi pen with me at all times, and have had to use it...
Sending you the best, Shawna
I have a sensitivity and sore feelings sometimes in the roof of my mouth. I do not know if it is a side effect of meds. I will gargle with Listerine and it helps a little.
Good luck and keep us posted!
I just got my positive diagnosis about 1wk ago but have had crazy symptoms for a few years. All of which I have discovered fit with this disease. I too get a very sore & coated looking tongue. I also get very sore little bumps on the end of my tongue. Along with that I will get 4 or 5 canker sores at a time. When I get them, I will get about 4 or 5 at a time and then they go away for awhile. Then as usual come back. I recently had about 5. I never know when I'm going to get or how many. I just had one the size of a pea on the roof of my mouth and often get them in my throat. I don't get the swelling though so you should probably talk to your dr. I feel for you!! I makes it hard to eat or even drink sometimes. My dr. said to brush my tongue and swish Listerine in my mouth. Can't say it helped tremendously, basically had to wait it out. Hope yours gets better..