bny806
Status:
Mood:
Ok
Offline
- Hello, I am wondering if anyone else has CNS lupus and has similar Sx:I get these really weird headaches, buzzing in my head.. I feel disoriented and can't think straight, slurred speech and can't walk right.. all of my limbs are tingly and I get...
- Do any of Y'all suffer from vasculitis? I am having a flare, joints all swollen and hurting, running a low grade temp and now my veins in my arm are really really tender (I had a blood draw out of it 2 weeks ago, but no IV's or anything...
- Hello! has anyone had this happen? A year ago I noticed a wheeze, only in my left lung base.. i had just had a cold, so i thought it was from that.. it persisted for about 3 months (no wheezing elsewhere in my lungs).. so I saw my dr who did a CTA...
- hello, I have undifferentiated connective tissue dz and some other autoimmune issues.. but i had a question about scleroderma.. i have noticed my skin becoming thicker in various places- arms, chest, back, face (when i open my mouth the corners of...
- Anyone else get flares with their hormonal changes or periods? Ugh.. my joints all feel like they have glass in them, it's miserable!
- ok, I feel like a bit of a freak, and curious if anyone has any clues!?!When my IVIG starts wearing off, i start getting what I call "Buzzy Brain".. my brain feels swollen, my fingers feel floppy, i'm weak, have numnbess, my arms and legs don't feel...
- I had a skin biopsy today (after 4 years of dealing with the rash).. the dermatologist said it looked like lupus (it's on my arms, shoulders, chest and neck.. sometimes face), kind of hive like. they said it would take a week to get a diagnosis.
- I have a question for anyone who could give any advice- how does disability work when through your employer? I have been sick x 5 years, and have made it through while working - a lot, and in a stressful career.. however it is causing more flares,...
- We are kind of on the verge of adding immunosuppresants to my mix (Plaquenil and IVIG).. however it really scares meI am constantly fighting my thoughts in my brain - weighing pros and cons of is it worth it? I think - what if I take them and my...
- So, I have been having some sort of exacerbation, and the only way I know how to explain it is that my brain feels swollen!!When I look up or down i feel a ton of pressure in my head (not a neck or tension headache).. it's a disorienting squeezing...
- Ugh, I have been struggling with a flare the past few weeks.. IVIG has helped quite a bit, but I am getting ulcers on my tongue (never suffered from this before).. Had one on my cheek, but i have one back on the back side of my tongue (where your...
- On immunosuppresants, how careful do you have to be about sick people? I am around a lot of sick people, and that is one reason that I am so hesitant to do the immunosuppresants... I am on plaquenil and IVIG at this time, but teetering on the verge...
- Hello! So, today I had a follow up appointment (been sick for over 4 years now)... I am on plaquenil and IVIG.. Anyhow, my ANA has always been pretty high, usually 1:640 or so.. anyhow they repeated blood work. and my CBC looked better than it has...
- k, I have a strange symptom, and I'm curious if anyone else has this, or has any idea.. No google search is even bringing anything up!I have been getting IVIG for 3.5 years for my weakness, neuropathy, but no definite diagnoses besides "Autoimmune...
- I have a question for yall. When I get sick (like a cold)... For about 3 days before I Have Major muscle, joint and lung pains.. sometimes I sware my heart even hurts when it beats during these days... I just feel lowsy.. I feel like i have a fever...