bny806
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- Do yall seem to have flares premenstral and during the first few days of your period? I can always tell when It's about that time as i ALWAYS have a flare the three days or so before. I have neuro issues, and those get worse as well. it's not a...
- Hey everyone! Hope yall are doing well!!! I continue to get IVIG every three weeks and can't live without it.. anyhow They checked a CBC on me this week and my WBC came back really low - at 2.6... has this happened with anyone? I think I have read...
- I was told a few years ago that my symptoms (I have neuro, joint, muscle, heart, intestinal symptoms).. may be caused by sjogrens, since my markers were elevated, but I thought, well my eyes and mouth are dry, but not THAT dry.. so I really didn't...
- Hello all! I have had autoimmune issues for almost 4 years now (mostly neurological)... My ANA is always elevated (1:860).. and my sjogrens test (can't remember which one), was a low positive.. I have had dry eyes on and off the past several...
- Do any of y'all get "vesicles" inside your mouth? I get them when I flare, inside my lips and cheeks - they aren't coldsores or anything like that.. they are small fluid filled blisters that pop up for a few hours and then go away... they aren't...
- I have a question ... I have been sick for 3.5 years and one thing I have noticed is that 2 days before I become obviously sick I feel my muscles start acting strange - my start feeling weak, shakey, my ear/head pressure gets worse and my eye...
- when I am having exacerbations I get pretty bad joint pains (wrists, ankles mostly , then knees and elbows )... anyhow, it's really interfering with my sleep., but it's crazy my joints will go from hurting .. and then even if I go to sleep for five...
- Anyone else get these awful pressure like headaches and feel disoriented during them?? During exacerbations, I tend to wake up fine, and within a few hours have the most pressure all in my head/ears eyes, neck and feel dizzy, disoriented and for...
- How does y'alls pleurisy feel? I have pain with breathing on and off the past 3 years since i have been sick, but it feels more musculoskeletal.. It feels like it's just my sternum that hurts with movement... I have bad joint aches, so I just can't...
- I'm curious how others would describe their swallowing difficulties if they have them.. I read online that the percentage of dysphagia complaints and speech issues is actually higher than I would have thought.. I really hate that I have that issue.....
- Does anyone else have hard painful nodules/lumps under their skin? It feels like I have a marble on the bottom of my foot- it hurts to walk on.. i have the same thing on my finger (the underside of it).. it's quite tender.. no skin changes or...
- So, I have been sick for 3 years.. it all started with the GI issues.. while I was breastfeeding.. with the recent events the Dr's are thinking I have Crohns.. they did some bloodwork and they found that I was anemic, and very vitamin deficient in a...
- Had my scope today - showed gastritis, and then the colon was very "friable" aka it bled easily when touched and swelled up when he would touch it or biopsy it, which is quite abnormal... no super obvious ulcerations though.. Of interesting note...
- Anyone else feel this way?? I am having my worst stomach flare ever (have a scope on wednesday), but i coudln't hardly eat or drink anything for 3 days.. and now anytime I do, it just feels like my food sits there.. I feel SOO bloated and...
- So, I have had GI issues for 3 years... colonoscopy/endoscopy 3 years ago showed gastritis, esophagitis, but otherwise normal.. I have since had flares on and off (consisting of abd discomfort, many bowel movements a day, and massive weight loss...