bny806
Status:
Mood:
Ok
Offline
- Do any of ya'lls symptoms get dramatically worse when your sick with something simple - like a cold? do your symptoms flare? I seem to get awful muscle aches, even the muscles in my eyes when I move my eyes .. my joints ache like crazy and all my...
- Does anyone else suffer from night sweats? I've been this way for years.. my husband has always commented on it, but I had a sleep study last night and they were commenting on it too (as the electrodes weren't sticking).. I wasn't hot, I felt cold! ...
- Hello all! I am in limbo land currently (been sick for a little over 2 years).. I first had a strange event during my epidural to have my child (blood pressure tanked - couldn't breathe and they almost intubated me).. Anyhow fast forward 2 years...
- I am in limbo land, but have a lot of strange neuromuscular symptoms, rashes, GI and cardiac symptoms.. I get IVIG for it all.. My ANA is always quite high, but I have a question about joint painsI noticed years ago when I leaned on my wrist (as if...
- Do any of yall get really shaky at times - my muscles will go through extra weak periods where they all feel SOOO shaky (like I ran a marathon - without the soreness, though I have that too mildly)... but it's really strange.. When I have a...
- Hello everyone! I am still pretty much in Limbo land, and have not had a muscle biopsy yet.. Last time I had anesthesia my body seemed to be affected badly by it, even with an epidural to have my son- my areas of weakness were greatly exacerbated...
- I had a question for yall - I have read that difficulty swallowing as well as speech involvement can happen with PM/DM... how many of yall have speech involvement- and if so, in what way does it affect you? I get slurred speech at times.. and I...
- I am still a mystery ( I get IVIG for some nasty autoimmune dz, they just aren't quite sure what it is).. Since all of my symptoms started (muscle weakness, numbness at times, cardiac and intestinal involvement too) I have had these little bumps...
- Hello everyone, I have been in limboland for the past 2 years for some weird symptoms - muscle weakness, twitching, blurred/double vision, numbness/tingling, tachycardia . you name it!!! I get IVIG treatments as my weakness became so severe...
- Sorry, I am new to all of this.. I had one more question.. Have any of you tried probiotics?? My dr suggested I do this (2 years ago when I had my first major flare).. and it made my symptoms WAY worse! the diarrhea got so much worse.. i quickly...
- Do yall have worse stomach pain when your hungry?? Do yall have worse pain when you eat?? I feel like both kill me during a flare.. During a flare everytime I eat I have to use the restroom , it seems like for a small meal that equals 5 or more...
- Hello! I am new here and have a few questions for yall who have a diagnosis of LEMS.. I am getting IVIG for my "Mystery" illness but LEMS fits perfectly.. however my blood work is negative..Those of you that are seronegative.. how did you get the...
- Does anyone else have this problem? During a flare, every single time I eat it hurts the top of my stomach and about 10-15 minutes later REALLY hurts, but the second I eat I have to have a bowel movement.. it seems pointless to eat sometimes, as I...
- I am having an awful flare of whatever I have (have a sibling diagnosed with crohns and I have most of the same symptoms).. I felt as I was doing better since I basically didnt 'eat much for a week.. but I lost too much weight..I have found that all...
- Hello Everyone! I have a mystery illness, but all dr's seem to think it's autoimmune.. the rheumy initially said sjogrens, but now not sure.. anyhow.. they put me on plaquenil (I also do IVIG, as whatever I have has caused numbnes, tingling, muscle...