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- Today my immunologist has added home breathing treatment. I just completed my first one. Is it normal to be very shaky?Thanks for the helpStacey
- My PCP ordered a calcium score due to high cholesterol and family history of heart disease. The first read came back. This is the part concerning the lungs. This is the radiology report: Anterior superior mediastinal densities. The patient...
- I finally met with my immunologist and not the NP today. He is concerned that my levels had dropped and I have had more infections. He is trying to increase my subQ from 8g to 10g, just need insurance approval. Wish me luck!I also met with my PCP...
- My immunologist's office just called with my blood work. I am a little concerned. My IgG has dropped for the first time since starting infusions. It went from 939 to 815. I asked the nurse if this could be why I am getting more infections recently...
- Has anyone ever had a problem with stress causing them to get sicker? I had been doing really well until a few months ago when things got rel stressful at work. I constantly have a sore throat, hives, congestion, shakiness, coughing, and fatigue....
- Sorry I have been MIA for awhile. I have been a little frustrated with things and I did not want to be negative. It looks like the pharmacy change should be okay. The Immuno put me on a new steroid nasal spray which sems to be working. She gave me ...
- We had a week vacation planned for our 25th anniversary. Left Sunday the plan was 4 nights in pigeon forge and 3 nights at the in laws in Alabama. For the first time I would attempt to infuse away from home. Well by the second day I was wiped out. I...
- Hello everyone I have not posted for a few days. I have been fighting off sickness for a few weeks now but finally broke down and went to my doctor today. Surprise another sinus infection and bronchitis. It is frustrating, right when I think...
- It has been a really good weekend. Yesterday I did my entire infusion without any help from hubby. I know for a number of you do it yourself every week but my husband insists on helping. Yesterday I got off early from work and had my infusion done...
- I know a number of people of had some problems getting the infusions improved through some BC/BS groups. I just got off the phone with BC/BS of TN (they use express scripts for pharmacy) and my infusions are approved for another year!!!! I have...
- I wish everyone a happy new year! My thoughts for everyone are that we all stay as healthy as possible! Thank you all for being there for me during the last year. Without this group I am not sure I would have been very worried about starting...
- I guess this is actually not a bad thing. I have been on SubQ since Feb and I am on antibiotics for the second time since Feb. Comparatively this is wonderful. I was on antibiotics at least 9 times last year alone so I guess things are working. I do...
- Yesterday I had an appointment with my primary care provider (the nurse practitioner who dug and dug until she found the CVID). This is the second appointment since I started infusions in February. She walked in the exam room and said "Stacey, I...
- Well I had blood work done after 6 months of infusions. My IgG has gone up to 930....yeah!!!! Bad news my IgA dropped to 34 and my IgM dropped to 19. Anyone know what this means???
- Last night I did my 7th sub q infusion. I have had headaches but not like last night. It started in the middle of the night. The worst headache yet. Thanks to my husband, Tylenol, and powerade I am doing better this morning but I thought I was...