DebbieF777

Sorry I am MIA much of time yet.  Just not real chipper these last few days especially.  Not sure what is going on except that for some reason only known to God and my body, my blood sugars have...

Hey guys.  Home from the hospital.  Thank you all for your well wishes.  They've not really gotten to the bottom of what is triggering the influx of bad antibody production.  The current theory...

Yes, the neuro has ordered another month.  I am feeling stronger, except when out in the humidity.We've been battling severe weather for the last few weeks and we've had 3 storms that have brought...

Well the pulmonary doc doesn't think my setback is from my lungs or the trigger for my worsening MG, but has given me an inhaler just in case to try with activity.The neuro nurse was alarmed and I...

The fatigue has progressively worsened over the course of a week and pretty much has reduced me to the sidelines once again.  Leo insists I was doing too much.  He has asked that I simply not do...

First my update.  I am feeling well enough to say I am hopeful that I may be tolerably better soon.  We have been extremely cool and Saturday, high of 58, I got in the woods for a 10 minute walk...

So I am mostly indoors.  My lungs just can't take it.  But, the humidity stayed down for Reeslynn's baptismal party on Sunday.  A wonderful time was had by all. To Neuro tomorrow for follow-up. ...

Nicole had to come up to Shawano to plan a wedding shower.  My next door neighbor (adopted daughter) was to watch the kids, but Grayson would have no part of that.  The little stinker spent the...

Thank you all so much for your thoughts and well wishes!  Knowing I had you all cheering and praying for me encouraged me!Recording some of this info for you and me, so there might be a few entries...

Until my thymectomy.  I have been terribly symptomatic for the last 3 weeks, so I am getting anxious.  To breathe easy would be nice...On to my more fun note.  Rees is 3 weeks old!And traveling...

Good news/good news. I'm sorry I have not been on much.  Something seems to be sapping me now.  Allergies?  Not much strength or stamina.  My life continues to whiz past though.Reeslynn and...

Well, its been a long time since I've posted again.  Started on cellcept and lasted 6 days.  Dr had me quit due to nausea and pain.  A few days later I got a call from hepatologist, he did not...

The diagnosis is the best possible.  NASH.  This comes from fatty liver and insulin resistance.  For many it will not lead to trouble, but in my case it could soon cause cirrhosis, but he feels...

emailed my liver biopsy results.  I think its good news.  Not sure.  She said I needed to wait until I heard from Dr Gawrie and his review of the slides.  But it looks like it's not...

Still no news about biopsy.  I think no news may be good news.  I put a call into the hepatologist and have been eating gluten-free. IVIG treatment today and tomorrow but thought I'd share my...