DebbieF777

Ross posted a video on facebook that really helped encourage me this morning.   And amidst all the testing I had on Monday, there was some good news. I have had a growth, with its own blood...

Cold/virus finally getting better, but my tummy is miserable.  Yesterday was not my day as I was sick to my stomach most of day, weak when I tried planting annuals (did get some done) and atypically...

Well, I've noticed lips tingling.  First noticed it with bad night of breathing with this virus, but now I've noticed it often.  Was a little bit worried at first that is was a sign of low o2. ...

I had two pretty productive days, despite the cold, but now it seems to be hitting me today.  Tomorrow, I am going to call Milwaukee and demand a new treatment plan.  Nicole called me over to see...

We had such fun at Grayson's birthday party, even though I was a bit spent after making food for a funeral in the morning.  Leo was a big help on the day.  He even took Erma home when she was ready...

Grayson got a rocking chair from his paternal uncle and aunt.  His Daddy put the rocking chair together and he was so darn cute with getting in and out of it, that the kids called and said they...

Extremely tired with this round, otherwise fine.  Labs look good, so I will be starting my Prograf (I assume)Chest follow up CT and chiropractor tomorrow and then I think I am off doctors until the...

And my dear little boy has been lucky enough to see 2 Easters!  The big birthday is coming on the 17th with a big shindig to be held on the 21st.I pray all my MG family is doing well.  Mestinon is...

Finally a chance to share a bit of my trip.  We started out with a bang!  Literally.  The van we were in was rear ended coming into Green Bay.  Scared us, but the van was fine.  The guy hit our...

That dear Grayson came down with a nasty cough in Cleveland?  I am taking him in to the doctor this morning as it is worse and he is wheezing a lot.Will update as I am able.

I'm fine.  Just pooped.  Have to babysit today and tomorrow, but will try and update with my trip and meeting with Jeannie soon.  Here is my Grayson Grand little man at Virginia beach.

Busy packing.  Been very symptomatic lately, so I am a bit apprehensive, but I do love a vacation.Hope to meet Jeannie on the trip, if we can manage it with her schedule. Will try to post once in a...

Had a good morning yesterday.  Went to doctor and was feeling okay.  My A1C is way out of wack, so now Metformin is my new friend, too.  Then, after doctor appointment I went grocery shopping. ...

Tomorrow marks the start of the last 2 scheduled IVIG treatments.  I have been a bit excited as I have been having brief single vision episodes for the past 3 mornings about 1 hour after my first...

She ended up having work cancelled d/t the snow.  She posted this on her facebook account during the day."Its international rare disease day! Take some time to pray for people with rare...