DebbieF777

I figured it was time for an update since I got stubborn this week with my treatment.  I refused my IVIG treatment.  Why you ask?  Because my labs have been bananas and I wasn't sure about it...

My daughter is putting together a team for the MG walk in May.  I am so pleased that she wants to do this.Otherwise things are status quo.  MG is stable though not gone... Still on weekly IVIG. ...

Just a quick note to wish you all a merry Christmas!I hope you all enjoy many blessings.  I am learning to get along with this RA.  Haven't started the humarin yet.  Hugs,Deb

Hoping for a new treatment plan!  This is so not in our budget right now, but we need to find something so I can do more.Grandkid alert.  I got a facebook message from my daughter consisting of 2...

3 treatments of plex.  They wanted to do 2 more, but we decided I was doing well and there were no promises that 2 more would keep me any longer from the next treatment.  Yes, for now, I will still...

Not gaining much strength and we were giving it until tomorrow.  In my defense, I did push a bit too much on Saturday (who could miss Jumping June Jamboree and the Rhubarb Festival with the...

Well, it seems the prednisone has finally really done its thing.  My blood sugars have been over 500 this week.  GP's are sure that its steroid induced diabetes and want weaning.  Neuro wants me...

Well, yesterday I had to sit for Gray and Rees.  Had to get up at 4 am and drive down there.  When I was changing Rees' diaper, I noticed a bull's eye on her upper leg.  At 9 am I took her to the...

I don't report often enough.  When I'm not good, I do not want to flag spirits and when I am good, I don't want to flag spirits.  Though I must confess, others notes, with the exception of losing...

So I have a stomach bug and when I got to my GYN appointment, my temp was 101.5 but I was darned if I was going to cancel.  Tylenol had brought it down that low and my bones no longer felt like they...

Well life has been interesting as usual.  No hospitalizations since Thanksgiving.  Still getting weekly IVIG.  I get 60 of solumedrol IV with that along with IV toradol, oral benadryl, and oral...

Well, I've been in and out of the hospital since my last journal update.  Developed gastritis from the solumedrol, and have been referred for Rituximab again, but no word on that.  I'm actually...

I am blessed and have much to be thankful for, but lately, I think I could fall under cranksgiving.  Why am I not so nice sometimes and take this disease as it comes.  I am trying.The kids...

Hard to believe Gray's appointment is next week.  His eye is better.  I truly hope it was just an infection.Walgreen's called to score me on my function.  I scored poorer, of course, but in my...

Nicole just called.  She got home from work and one of Gray's eyes is drooping significantly.  My heart is breaking!  I've instructed her to take him in immediately.  He did have a bad fall about...