Probably to hospital tomorrow

Not gaining much strength and we were giving it until tomorrow.  In my defense, I did push a bit too much on Saturday (who could miss Jumping June Jamboree and the Rhubarb Festival with the grands?)  Then to top it off, we were rear ended on our way home from church this morning.  So I'm already experiencing miscellaneous aches and pains with these high sugars and breathing and chest heaviness is hard at times, so its probably time.  Neuro plans on squeezing me in on emergency visit and if she deems necessary, I'll go in for plex.  Had hoped to hold off until after I went to Rush in a few weeks.
On a lighter note, Grayson and Rees were of course here for the weekend again.  Grayson is starting to balk a bit at church.  Last weekend, we listened on the radio and every time it was hymn time, he would announce "Church ober!"  This weekend, when we got to church he wanted to go to his "cool" (school) instead.  (The school is attached to our church and he starts 3 y.o. preschool this fall."  His mommy told him he had to go to church because it makes God happy and he came willingly.  3 potty breaks and a church service with us in the back pew and a very antsy Grayson, pastor walked up the aisle at the end of the service.  When he reached us, Grayson shouted "We did it!"   Now this is the same boy that on the way in told every body that would look at him that he went potty.  I have the feeling that if he doesn't learn to tame his little tongue a bit, I will have lots of funny embarrassing moments, but I really don't mind.
Now Rees on the other hand sat and growled in the back of the church like her unusual and unique self.  She now says GheeGhee clearly, but still calls me mama sometimes.  She remains a bottomless pit, and today decided that licking stones, dunking them in the sand, and licking them again was a new and unusual treat.  Now this is a new Pica to me, but I guess its not that uncommon.  I told Nicole maybe she should get her iron checked.
A picture from today.  This is post car accident, so you can tell all is well.  Rees may have a licking rock in her hand......

Replies

ray2me
ray2me

best of luck to you. I hope they find answers , Charlie
deleted_user
deleted_user

Sending you warmth and healing from western Wisconsin. Thinking of you,
Tricia
newmugg
newmugg

Deb, I\'m so sorry you are going through such a hard and long flare. Hoping plasmapheresis helps kick the MG back.
I guess I missed a journal or two. You are seeing a specialist in Chicago?
Sending hugs and strength
-sherry
DebbieF777
DebbieF777

Sherry, I am going to see Dr. Barboi at Rush, just for another opinion on treatment. I just am not flourishing on this regime...The steroids are doing me in...Weekly IVIG just keeps me going, not much improvement.
txkiki53
txkiki53

Deb, glad you will be seen, and getting plex. Pray you feel better soon.
Hugs,
Annette