Waiting, waiting, waiting
Well life has been interesting as usual. No hospitalizations since Thanksgiving. Still getting weekly IVIG. I get 60 of solumedrol IV with that along with IV toradol, oral benadryl, and oral tylenol. Also on cellcept 3 x per day and of course mestinon...But I'm stable. No severe symptoms. I had influenza last week (tough week) and only had difficulty breathing one night. (Love my bipap.)
Of course, I had help with tamiflu. And on Friday I decided to throw a new problem in the mix. After years of menopause, I am now menstruating again (sorry guys but thats the issue.) I'm pretty sure by the ultrasound tech's reactions today, that she found something on the right side. Hopefully just a cyst. I was hoping it was just too much solumedrol, but with some pain I am thinking probably a cyst. Waiting, again for results.
And of course, this afternoon my sinuses have decided to put their two cents into the mixture. Maybe thats why I feel so tired. I slept 12 hours last night. I sure hope my immune system isn't going to take off on me again...
Between the kids marital issues and sick babies, my stress levels are trying to get high. I keep giving it to God. Lets hope he sorts it out soon. Now if my doc would just post results...
Hugs to all.
Of course, I had help with tamiflu. And on Friday I decided to throw a new problem in the mix. After years of menopause, I am now menstruating again (sorry guys but thats the issue.) I'm pretty sure by the ultrasound tech's reactions today, that she found something on the right side. Hopefully just a cyst. I was hoping it was just too much solumedrol, but with some pain I am thinking probably a cyst. Waiting, again for results.
And of course, this afternoon my sinuses have decided to put their two cents into the mixture. Maybe thats why I feel so tired. I slept 12 hours last night. I sure hope my immune system isn't going to take off on me again...
Between the kids marital issues and sick babies, my stress levels are trying to get high. I keep giving it to God. Lets hope he sorts it out soon. Now if my doc would just post results...
Hugs to all.
Replies
Hang in there, Deb!
A see-saw siege, for sure.
I have a kidney cyst: IVIG aggravates that cyst - oww.
Maybe that\'s a factor - if you find out - you have a cyst?
Big Hug - Ross
Oh Deb! You are being besieged every which way....Will hope there is a quick fix for the cyst problem and that your sinus can be brought under good control too. You don\'t need the extra aggravation! Will hope all gets sorted out and you can get some much needed rest.
Do you have a nasal inhaler? They really help keep my allergies from going into the sinuses. So glad you have the BIPAP! I could not manage without mine either.
I am sending you rays of sunshine.....Consider them the light at the end of the tunnel.....Hugs, Marie
Thanks Ross and Marie. I will be asking about IVIG Ross. I was hoping to get rid of the solumedrol. Nasal inhaler? I will have to look into it. I\'ve been a bit prone to sinus infections since MG treatment started. Nettipot didn\'t really help.
I am glad you are stable. Stress is so hard to manage at times. I will be praying for you. Hug!
Deb , Big Hug for you and hopes that you will soon find the right answers and stress blockers to put you in remission . Charlie
Oh Deb, I thought I was reading how my life goes, dang.....hang in there hope you have answers soon. Enough already.. Hugs my friend, annette
Sounds like everything is happening at once for you. I hope things improve very soon. Gez xx
Thanks for all of the loving care everyone. No answers yet and I know my G.P. is off on Tuesdays (is that wrong that we know our docs schedules?) so I have a new day to enjoy. Signing Grayson up for fall preschool tonight at our church preschool. The kids are moving back here this summer. The daddy is the instigator of this, but whether he comes or not will be another story.
Good thoughts being sent your way!!
Praying!
And the verdict is endometrial hyperplasia, a larger right ovary, and some unexplained small amount of fluid in my adbdomen. I\'m hoping the fluid was a ruptured cyst and the cause of all, or the hyperplasia is due to solumedrol, but now I\'m to have a biopsy...
Hang in there. Wishing you the very best of outcomes.
Just a tiny note that I\'m with you....off to the OB this afternoon to check on my ovarian cysts too! Go ovaries! -Tricia
Tricia-BTW - I am cold all of the time, too. I think it started when my body decided to make estrogen once again.