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- Hi all, I am still tapering my steroid but stuck on 4mg at the moment - due to go down to 3mg next month. Feeling pretty rough just found a small rash on my right knee. This is the same as on my stomach, so I am feeling a little alarmed. Could...
- Hi all, I am still tapering and now on 4mg Pred (plus 20mg MTX) and have been for a month now. I daren't try tapering again as I have an upset stomach which has lasted 3 days which is unusual for me. Also feel not brilliant and some itching and...
- Hi all, I am at a loss what sort of exercise to do with having DM. My Rhemy said I could only do water aerobics and thats it. I used to do step aerobics and the gym but not sure if that would make matters worse?? What does anyone else do for...
- Hi all, I saw my Rheumy and Doctor recently who said DM/PM could possibly burn itself out! Its not unheard of apparently although rare but with that comment from them it brought a lot of hope. I thought I would share that thought for everyone here...
- Hi all, As I have DM I was interested to know if anyone has successfully finished their treatment of Plaquenil whilst on MTX and steroid? If so, did the rash return? I ask as I am fed up with taking it as I am worried about the pressure in my right...
- Hi all, I have upped my MTX to 20mg as per Rheumy's advice. I have now managed to taper to 5mg of Pred. Having spoken to my Doctor that I want to taper down to 4 1/2mg, she recommended that I stay at 5mg until I see my Rheumy in March. At the...
- morning all, just wondering your views on the pneumonia injection. Been advised to have it but has anyone had it and had any adverse effects? I always worry about what else has to go into my body and the reaction. As I have DM don't want to "rock...
- Hi all, I was wondering if anyone else has had a tingling feeling in their arms and back whilst tapering their steroids? It is not unpleasant - in fact it feels quite good - is this because of the tapering? or is it because I have upped the MTX to...
- Hi all, just had monthly bloodwork done and my lymphocyte count is really low - Doctor said may have to speak to Rheumy about it. The other results are OK - does anyone else have this problem? I know the MTX will be low but this is under 0.80. ...
- Morning all, my Rheumy has just upped my MTX dose to 17.5mg to try and get off this awful steroid - now down to 7mg and holding my own but with a bit of pain, but apparently this is to be expected. I so hate/love this steroid. Why don't they...
- Hi all, just wondering if anyone feels "yukky" the same day as taking MTX and the next day feel really sleepy? After these 2 days I feel relatively back to "normal".
- Hi all, I wa wondering, as I will be increasing my MTX from 6 tablets to 8 tablets (20mg) - anyone have any suggestions what to eat so as not to feel sick? I take folic acid 3 times a week. Really don't want to do the injections. At the moment I'm...
- Hi all, just to let you know that I have recently seen my Rheumy and he said that I am a lot better than than last year - the MTX seems to be (at the moment) the one that has been the most effective in bringing down the swelling on my hands and...
- Hi all, another problem I've hit - now my blood pressure is too high. I know it is probably the prednisolone causing it. Anyone have any suggestions on how to try to lower it whilst on the steroids? I have been taking blood pressure lowering...
- Hi all, well it's been just over a year and a half since I was diagnosed with DM. I feel not much further than I was a year ago. Admittedly the pain is better and I have improved but it is so frustrating - still on the damn steroids still can't...