Hi Amber. I have not had this so maybe it's the MTX. Well done on the Steriod taper. It's amazing how much you start to perk up once off them. Let us know how it goes. Autumm

Hi Amberhere, My tingling is best described in this rap song:

I tingle in the arms and I tingle in the legs, I tingle in the back yard and I tingle in the head, I tingle in the night and I tingle in the day, I tingle, tingle, tingle till I don't know what to say...

Best wishes on your steroid taper. Keep us posted.

I also increased my MTX as I decreased prednisone. I can't remember if I had tingling, maybe a little. I do remember itching!! good luck with your taper!!

joyforall, i also itch a lot but had not idea why and never even considered bring it up to my doctors, but now I may bring it up to my new rheumy, as I have so much nimbness in my fingers that I can barely use them for anything, I am tapering my prednisone again against my will at 5mgs per week, but have not been advised to up my MTX by anyone. I am on 15mg of MTX per week. I take 5mgs Sat am, 5mgs Sat evenings and 5mgs Sun am. I have no idea why it is broken up that way. Now that I have my 1st new rheumy I can bring all these questions up to her. She is supposed to be one of the best in the area, at least her team with her sister and father are supposed to be the best, so I will see.

Hi joyforall - did the itching stop or is it still going on? I ask as for the past few days been getting really itchy all over - driving me nuts! I am tapering now on 6mg steroid with 17.5mg MTX - seem to be at a stop at the moment.

brenda - when I saw the consultant he put up my MTX from 15mg to 17.5mg to try to replace the steroid taper. He wants to put up the MTX another 2.5mg soon but hopefully I won't need to. My dose of MTX is taken once a week (7 tablets yuk) with folic acid 3 times a week (not on MTX day).Best wishes.

Hi Amber. Maybe you just need to check the itching out with your doctor as you have increased your MTX. The odd itch is ok but if it's driving you mad you should check it out in case your liver enzymes are up, it's ok because everything goes back to normal if they lower the dose again but do mention it. Let us know how it goes. Autumm

amberhere, I have been on the same dosage of MTX since I started taking it 7.5mg per weekend. I take them as 2 pills Sat morning, 2 Sat evening and 2 Sun morning. I take folic acid everyday. I just started with new neurologist and rheumatologist who are affiliated with a different hospital than I was going to and I do prefer the newer hospital. The doctors seem to be older and have been in practice for much longer and the rhematologist is in practice with her sister and father and they have worked with patients who deal with myositis for manyyears, i am just not sure if they have patients who have PM, but at least they are listening to me and asked me the right questions when I went in to see them, I had to cancel and reschedule my appt with my new rheumy last week and I didn't like that, but I will deal with it and I go to see her before Christmas and her staf person told me if I run out of any of my meds to call her and I haven't had a doctor tell me that lately. They all seem to have signs on their walls that state not to call for med to get them all at each visit. I am planning to get all my refills before the end of the year for a 90 day supply if I can. Afte Jan 1st deductibles will start over again and right now I am at my max and don't have to pay anything. As you all know our meds are expensive. I can't believe how muchmy insurance company pays for my meds each month and I am so grateful. In fact tomorrow I have to complete my renewal for 2015. I like my current iunsurnace but my premium has increased by about $85.00 per month, but it is better than ot having insurance. I just wish that I could work at least part time. I know that I can't and will deal with it. Goodnight again. No proofreading.