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- Hi, I am getting in a terrible muddle with this site - I can't read any replies and getting really fed up with it. Why isn't it straightforward??? Hope you are keeping well, sorry don't know about how to correct mistakes. X
- Hi all, really surprised at this new site!! Lost nearly all my friends and don't like this site at all - I much prefer the old one. Just an update - still on MTX but 17.5mg now concerns by Rheumy that my white blood count is so low the MTX may be...
- Hi all, just wanted a bit of advice, I apparently will have to go on calcium supplements which I understand is prescribed by my doctor. I guess most of you are on these? How are you dealing with side effects if there are any when taking MTX and...
- Hi all, I have not posted in a while as I had a fall and chipped one of my knuckles so have been unable to type properly. Well, unfortunately I have flared and now have to up my MTX. I can just about stand the 9 tablets a week, was offered...
- Hi all, just an update from my last post. Been to see the Dermatologist today and now having a CPK blood test soon. He has prescribed some steroid cream which I think is highly unlikely to work, and if that doesnt work another cream again which I...
- Hi all, I have been doing OK on MTX and tapering the steroid to 1mg plus Plaquenil. The problem I now have is that a couple of weeks ago I started to get a small rash on my knuckles of only my right hand. It has now gone into the classic DM...
- Hi everyone, one of my neighbours has mentioned he has arthritis and suggested lemon juice in water as he had really good results for this. I know it is not quite the same, but has anyone tried lemon juice for DM? I tried some for a few days but...
- Hi all, I hope you all have had a good Christmas. Can anyone advise me? At the moment I have come up with an awful rash on my right hand which the Doctor said is eczema and I have it flaring on my left foot. Is this common with DM? I wondered why...
- Hi all, I haven't posted for a while but just to let you know that I am now down to 1mg steroid. I can't say its been easy and I am now getting sore red hands which the doctor has prescribed steroid cream for. It seems there is a price to pay for...
- Good afternoon all, well the good news is after seeing my Rheumy, that my DM is in remission! All the praying every day must have helped I am sure, together with a very stubborn view that it WILL NOT beat me. I am so happy but the only down side is...
- Hi all, I have tapered my pred to 2mg now and still on 20.5mg of MTX BUT I am now getting quite bad pains all the time in my hands and wrists and my knees which is a bit of a new one. At this moment in time I feel very upset and hard to control my...
- Hi all, I have not been on this site for a while due to my lovely son and his fiancee having a beautiful baby girl! Time has just whizzed by! On to the tapering - I'm now at 2mg Prednisolone - I'm finding it a bit hard - getting slightly more pain...
- Hi all, had a bit of good news yesterday - I am having regular eye checks as pressure was found t be high in right eye on a couple of occasions. Within 5 months I now have really good vision and the eye specialist is really pleased for me. She is...
- Hi all, just received an insect bite to my left ankle - now swollen up - I am treating it with an antihistamine cream - is it OK to take the antihistamine tablets? Has anyone experienced an insect bite? If so, how did you treat it?
- Hi all, I have received a message from an Olga in Germany who is interested in DM as she has a friend who has it and apparently does not take medication for it and is doing well. If you are reading this Olga, please feel free to share this...