amberhere
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- Hi all, it may sound bizarre but at the moment I don't know how to live my life. One part of me is happy and the other has the constant niggly reminder of my DM. I try to be happy as much as possible but underneath I feel worried. I keep thinking...
- Hi all, I have successfully tapered from 9mg to 8mg but now I have been on 7mg for a couple of weeks and felt a bit rough but today my hands and feet are really painful. Its the usual question - should I bear with it or go up to 7 1/2 or 8mg? I am...
- Hi all, has anyone felt really tired most of the time when tapering their steroids? I have at last managed to go from 9mg to 7mg at the moment and it is hitting me hard. Luckily the puffiness under my eyes is beginning to go down which I assume...
- When I had my ultrasound done the other month, they said I had an enlarged spleen which again they said was "normal" for people with DM. Is this always the case? I'm getting fed up with having diagnosis that would normally be OK if it wasn't for...
- Hi, myRheumy said my ESR level was high (30 instead of 0 - 19) but this was to be expected with DM - does anyone else have this elevation so high?
- Hi all, saw my Rheumy the other day who is pleased with the results of the combination of MTX, Plaquenil and steroids. (I am tapering the steroid). Although my ESR was raised she said it was quite normal due to the DM. I asked if I would always...
- Hi all, I have received a message from a person from thehennegrouup.com - has anyone heard of this? It is regarding a personal interview via the telephone.
- I spoke too soon, been sick and diarrhoea all night - what do I do about my meds? Do I still take them with the hope of not being sick or wait 24 hours? I am worried about not taking the steroids and Plaquenil etc.
- Hi everyone, today is at the moment, a really good day. I actually feel relatively OK - my hands still a bit painful but my arms feel OK - just totally enjoying the feeling. Can anyone remember how it was to feel "normal". My mind is whizzing...
- Hi all, I went for my monthly bloodcheck with the doctor yesterday - my hands seem to be less swollen now but I now have more pain in them and in my arms. I successfully tapered from 9mg to 8mg prednisone for nearly a month now (not without some...
- I am currently on 1,000 iu Vitamin D daily but have read that usually people are on a much higher dose daily - wondered if the dose needed to be put up? Has anyone got the same dosage or is theirs higher? Also - I have 5mg Folic Acid tablet once a...
- Hi all, has anyone gone for a second opinion on DM? If so what was the outcome? I am considering this as I am not entirely happy after a year that things are going as well as I thought they would with the meds. I still have swollen fingers and...
- Hi all, I have been racking my brains now for almost a year trying to find an answer to when I actually got DM or what triggered it off. It may be a shot in the dark but just before I started getting the rash I worked for a company who insisted on...
- Hi all, I was wondering if the MTX doesn't work, what does the Rheumy try next? I have had Imuran, Plaquenil, Prednisone which I am currently again trying to taper. I really want this MTX to work but with my white blood cells being low it may be I...
- Hi all, just had some bloodwork done , apparently my WBC is quite low - they think it could be to do with the steroids, folic acid or the MTX I'm taking - any thoughts on this?? I am due for more bloodwork next month.