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So, I have been having some sort of exacerbation, and the only way I know how to explain it is that my brain feels swollen!!
When I look up or down i feel a ton of pressure in my head (not a neck or tension headache).. it's a disorienting squeezing sensation, like my brain is getting squeezed.. If I sneeze, or cough it feels like my head will squeeze/pop off.. and my right eye always feels like it will pop out.. sensitive to light etc (I have had migraines, it's not that at all)..
when these episodes happen I feel very uncoordinated. My limbs don't feel like mine.. my neuropathy is worsened, they all feel more numb, i drop things, it feels just strange to walk.. when I had this more severe a couple of years ago i felt very confused and disoriented.. it was awful!
Just curious if anyone else feels this way?? I have been working a lot and had increased stress this week. so I know that doesn't help
Oh, and my temp always increases to around 100.1 when these episodes occur!?!?! GRRR
When I look up or down i feel a ton of pressure in my head (not a neck or tension headache).. it's a disorienting squeezing sensation, like my brain is getting squeezed.. If I sneeze, or cough it feels like my head will squeeze/pop off.. and my right eye always feels like it will pop out.. sensitive to light etc (I have had migraines, it's not that at all)..
when these episodes happen I feel very uncoordinated. My limbs don't feel like mine.. my neuropathy is worsened, they all feel more numb, i drop things, it feels just strange to walk.. when I had this more severe a couple of years ago i felt very confused and disoriented.. it was awful!
Just curious if anyone else feels this way?? I have been working a lot and had increased stress this week. so I know that doesn't help
Oh, and my temp always increases to around 100.1 when these episodes occur!?!?! GRRR
You might want to go to you doctor or at least call them and report your symptoms and the fact that you have a fever.
My fever generally goes up when I have those symptoms too. I get clumsy and can't seem to hold on to anything when I get a flare like that. Sometimes, I lose my sight (which is scary), and other times it feels like my eyes are about to shoot across the room. I have had seizures...which are not fun. It does feel like someone is "squeezing" my brain (not my head...my brain). And, I don't want to alarm you, but you might actually be experiencing some slight swelling. It's always best to get these thing checked out.
Call the doctor...and feel better.
Mbutterfly - yes, I get horrible butter fingers! Typing with floppy fingers and dropping everything UGGGGH... They are telling me to just stay the course right now - take aspirn, Plaquenil and IVIG... trying to avoid immunosuppresants. I have felt like I was going to seize when my "brain" symptoms have gotten bad.. its a horrible feeling!
Nanny - yes, my ears get this sound... like a whooshing sound.. and it's like I can't hear well (like everythign is muffled), yet its all loud and irritating.. MY BP is always find during these episodes.. but my heart rate and temp go up...
It does make me mad that stress can make physical symptoms worse.. it's so frustrating.. and it makes me feel like it's my fault that I let things get to me and cause exacerbations.. grrr I have been in the sun.. and that of course doesn't help either..
I've found that the best thing I can do is turn to my yoga & serious meditation. I've got guided meditation CD's & it helps so so much.