Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
http://www.lupus.org/answers/entry/what-do-i-need-to-know-about-vasculitis-and-lupus
I do have some petechiae and I also get hematuria (microscopic)... and awful nerve and joint pain and fatigue.. My joints have even been swelling up and some of them don't ever go down.. like some sort of erosive arthritis :(
My WBC count is down to 2,9 as well... so not sure when I need to get on steriods or do something else.. I'm finding it hard to function - work, kids, house and so on!
I send you my best wishes and please be rest-assured that I understand how difficult i is ton many occassions to deal with vasculitis as a patient..
Best wishes for you to succeed from Kristina.
I started a new job, and that first week is when I got ulcers - on my scalp, mouth and inside my hose (ick).. rash, crazy joint swelling and aches.. muscle weakness, low grade temp and just all over ickiness.. my joints feel like there is glass in them, its almost dibilitating.. and it's for sure Frustrating, as I don't have time to sit around, and I need to be able to grip things, and move better than a 90 year old!
I have been taking my baby asprin again.. which i feel like helps.. I have been on plaquenil for 5 years... do they have increase the dose again, like they did in the beginning??? I feel like i need to up my levels again or something.. I worry I"m doing permanent damage (blood in my urine, joints getting deformed, even the chest pain returns during these flares.. and pleurisy.. which is different than my other chest pain).. blah!