jennyd36
Status: Trying a new med this week and hopeful for improvement.
Mood:
Ok
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- Honestly, if I could cut off my tummy and back for awhile to get a break,I might do it.These last few weeks are testing me. I haven't had a break from the pain (except yesterday) for over two weeks and I'm losing my mind, crying cause I'm tired of...
- Anyone know of low cost clinics? I lost my insurance with my job and don't qualify for Medicaid. My pain meds are 700$ cash but I found a discount card and now pay 130$, but I need to see a doctor and am hoping to find cheaper then the 100$ urgent...
- I've seen this on several occasions and just wanted to comment. While some of us don't show cysts until later in life or symptoms...it still means that if you have PKD now or 20 years from now, you were born with it and have always had this illness...
- There have been so many with alot of pain lately (including myself) and sadness that I wanted to make sure I posted this.Today was actually a really good day pain wise. It didn't get terrible all day. I stayed on top of it well and never was...
- I have noticed that so many of us, including myself, have had high levels of pain and feelings of giving up, questioning our reason for being here lately. I started to wonder why this is. Can it be the weather, time of year, etc? I know for...
- I can't stop crying. It's been two years nonstop pain with a ton of pain meds and I'm tired. I don't want to live like this anymore. There has to be another way. My quality of life sucks. I did dishes, vacuuming and several loads of laundry...
- I read an article of a study done with those of chronic pain and activities. It notes that when we attempt to stay busy and do activities that we often experience less levels of pain.I started to think about this and when I first lost my job I...
- I think we are all allowed a pity party day and I'm feeling that now. Today I am sick and tired of this pain caused by this illness. I WANT a day free of pain and illness. I want to eat a full meal without wanting to vomit from feeling full. I...
- Background: In January I had three acupuncture treatments in my back with electrodes attached. Its the first time in 2 years I've taken less doses of medication then prescribed. I was hopeful it would work some but wasn't able to maintain at the...
- This is so awesome I wanted to make sure everyone in Arizona was aware.The start time is actually 730am. RSVP to save your seat. I'll be there with my husband. This is free!!Jenny BE SURE TO RSVP FOR THIS EXCITING EVENT! SATURDAY, MARCH 31, 2012...
- Last night I had to get my meds filled because of issues with my docs office I didn't get them until last minute. My insurance changed so I had to find a new pharmacy. I had my others transferred to Frysfood aka Kroger and my husband always drops...
- If you had three days pain free and you could do whatever you wanted, what would you do?
- What do you do for nausea and how well does it work? I have just a few Zofran left that work amazing, but Medicaid does not cover so once I am out..there is no more.Anything other then meds that works for you?
- Like you spend ALOT of time waiting for pain meds to work so you can get something done or get up from the bed? I feel like I've said "I'm waiting for my meds to kick in" more times then I say anything else. That's alot of time wasted on waiting. ...
- I have two questions. 1. Has anyone tried both Oxycontin/Oxycodone and switched to or from dilaudid? Which one worked better and less side effects?2. Has anyone tried medical marijuana for PKD pain? It is now legal in Arizona for medical reasons...