Ditto. This am I had finally gotten a good night (and day's) sleep and my son was waiting for me. I HATED saying this to the hubby but it was true! After so much time in bed I was kind of locked in a position and I took my pills and rested for another hour. I just told him I HAD to wait for the pills to kick in, especially as I slept through 12 hours w/o any! That's almost unheard of for me, but I must've needed the sleep! And yep, those were the exact words out of my mouth, "Gotta wait for the pills to kick in."

I'm not proud of it, but if I'd had tried to move around, especially with a 2 year old, I would've been putting myself in a worse situation. I guess it's something most of us have to live with. But at least we HAVE that med to help- a lot of CP patients don't have anything,

I'm in the same boat too. This morning I had to get up right away when my alarm went and it wasn't fun. I took my meds and got over to bf's and just crashed on his couch. I usually spend about an hour in bed after my meds then I actually feel like getting up. Throughout the day I end up on the couch or bed alot and if I take my bt meds I will wait till they kick in before attempting to do anything else. Sometimes even that doesn't work and the other thing I'm sick of saying is "I'm sorry I'm just hurting too much to get up and help" or something along those lines. This is usually around supper time and I hate it. I wish I could do more, I wish I could help at least, I hate feeling useless and like I'm not carrying my weight but what can I do - I do what I can, when I can.

Every morning is about waiting for a.m.meds time....then waiting for coffee and meds to bring the slight sigh of relief that starts the day....

Then trying to not let pain get too far out ahead of me on breakthrough meds........'cause they won't be as relieving if I wait too long........

Frankly...I miss a life without meds all together....
Though, I'd have no life at all without them..

Hugs....jc..

Your posts brings tears to my eyes. I'm always trying to tell others that I'm not depressed, just grief. Cp is a thief and the losses, large and small, are very hard to swallow. I've done this just for two years and so many of you much longer. It has changed me forever. Although I'm accepting it much better lately..i wonder if there will come a time that I'm not heartbroken of my losses.
I went to a potluck and my employer of eight yrs that forced me out. I left in tears because I miss working so much. I think I isolate from friends cause I have to face reality when I see them.
I am so grateful for this group andtalking with others who understand that it sucks to wait for meds all time, that lying in bed is not as fun as it seems. or getting out of chores cause I dont feel good....id rather be productive. Cp causes guilt. My mind has a busy day and plans, but my body disagrees.
will this pain and loss make me bitter and mean in time?

Oh yes v ery much like that.
I'm always saying just waiting for painkillers to kick in but half the time they don't.
It's hard living like this, al ways w aiting.
Al ways happen they, all day long.

oh yes, being on the fentanyl patch helps, but there's break through and i try to lean against the heating pad to see if i can do without. after half an hour, i decide, then it's 45 minutes. i say that all the time when people call (who know the score). just sitting here waiting for pain pill to kick in. when i used to have to walk a lot more in PR, i knew where every bench was b/c i'd have to sit there and wait b/c i couldn't take another step. always carried my camera or read on my phone. so good to have ppl who really know what that means!

OMG..that is one of the most spoken words at my house too.

I try really hard to not say that to my kids too often but, it is either that or "sorry honey, I can't right now"

HUGS my friends in pain.

I'm sitting here crying while I read your posts. Especially Jennyd36. I am there with you right now. I feel like going back into my hole where I was for 12 years. I am so frustrated and upset over this.

jenny,
I say that too, I think we all must, looks like from your thread.
the worst part is when I know that even If I take more, it is not going to help me so I am left with most of the day left and just knowing it's not gonna be fun.
Hugs to you and all who know this feeling.

Oh sisyfis, don't go back in the hole. We MUST figure out a way to have a meaningful and productive life with this pain. Cause i have a feeling it's here to stay.
Man, last week there were alot of tears because bt meds weren't working. Today I am grateful that about half of the time the bt meds work and that allows me some freedom.

jennyd, i really feel for you. that must have been so hard to go to that dinner. i don't know how long ago you left that job. i really missed work at first. i'm sure after 8 years, you had close relationships and it gives life meaning and a routine and socialization, etc. slowly, without daily interaction, it is hard to maintain those relationships.
you will get over it. CP is a thief, but it's also a giver of compassion and new friends and a new way of appreciating things you may never have noticed. not to be pollyanna.
this group is a wonderful lifeline to so many of us. we're here and all going through all the phases all the time.
i hope today has been a better day. hugs and love!

I never thought I would ever say; "I wish I felt better so I could clean the floor." When you are ill you just have to do what you can, when you can. If I can get some basic every day things done I am happy. It is too much when you start to feel guilty about what you can not get to.
I am not currently taking any pain medicine. I would like to, I just don't know what I could take that would not hurt my ulcers from Crohn's disease. My best friend right now is my heating pad. It does not take the pain away, but it is soothing. I am not looking forward to the summer...
I am sorry so many people are in such pain. Feeling helpless to do something and not being able to take action in some way to make things better, really sucks. I try to see the funny and try not to get too depressed. It does creep in now and then...
Good luck everyone. :)

I find that I too wait for my painkillers to kick in before I get started on chores or laundry. The drawback for me is that sometimes once the medications do kick in I am drowsy and no longer have the motivation to get up and get started.

I find I usually have to suck it up and get started on something easy and take lots of breaks if I need to. Then at least I have gotten a start and tend to stick to whatever it is that needs to get done.

I also try to get something done most days so that things don't start to really pile up on me. It is really demotivating when, "EVERYTHING NEEDS TO BE DONE". So I spread my simple day to day chores out over the course of the week.