jennyd36
Status: Trying a new med this week and hopeful for improvement.
Mood:
Ok
Offline
- Very similar to the other post, I had a birthday party for my ten year old yesterday.I should have known better to start getting the house in order at the start of the week because it gets so messy, I'm so behind from being in pain and putting it...
- So I saw my doc on 2/6 who states the pain is caused by my kidneys alone and the disc is very very minor. I asked for a referral to a spine doctor to review the MRI/CT scans just to make sure there was nothing else going on. I saw her on 15th and...
- They are now doing the scs trials for pain related to polycystic kidney disease. My question: I lost my private insurance last month when I lost my job. Now I only have medicaid. Has anyone with medicaid been able to get approved for this treatment?
- Just needed to vent quickly. When I first wake up in the morning I'm hurting so much that I literally feel like I'm going to vomit. Does anyone else get this feeling and is there anything I can do to ease it?Just sick of it, literally.Jennifer
- My creatinine stayed level at 1.1 for over 3 1/2 years and after eight months of pain meds it has gone up to 1.3I wonder if this is related to the pain meds having to filter through the kidneys? curious if this happens to others.
- Two questions:1. I have a herniated/buldging L5/S1 disc and I need to see a doctor. Who do I see? This was caused by extremely large kidneys putting pressure on my lower back.Does this get better without surgery?2. My insurance no longer covers...
- Hi there.I was declined the deroofing surgery after two doctors felt it wasn't worth the risk. Now I need to figure out what to do. I was told I have a buldging disc/herniated disc on the L5/S1 due to the pressure from the kidneys. This is...
- I have not been able to get into dailystrength now for a while. It says an error that the file is too large or something of the sort. I was able to get in today with Internet explorer so I am thankful.Anyone else having issues?
- Just venting: I lost my job of 8 years because of the chronic pain issues. Pending long term disability.I wake up today and realize that I can't pay my cell phone bill that I put off a few weeks because of finances and they will turn it off. Not a...
- Geez, I do not have a memory anymore.There was an online PKD group created about a year ago and it was announced at the Phoenix Chapter in Arizona, but is offered to anyone.Can anyone remember the address of this online group?
- On a "normal" pain day I feel my worst from the time I wake until about 11am. Then I have to sleep for a few hours. When i take and take more meds then it's about 3-4pm that I actually feel I can leave the house for an hour (but more then an hour...
- Please know that regardless of what anyone tells you, weather it be social worker, neph, etc..... you can get on the list at exactly 20% or less. The more time on it, the closer you are to getting a transplant. So, please start getting prepared...
- I have been in this relationship for 8 years now. After three weeks of knowing each other, we blended our four children and I moved it. It has been a rollercoaster of a ride for me. I have left several times for different reasons. Mostly I have...
- I met with a second who refuses to do the surgery. He agreed with the Mayo urologist and feels the risk is not worth the benefits. They agree for removal of one kidney or transplant. I am now officially without my job :(Now I am just giving myself...
- I am so saddened that after 7 years with my employer, when it came down to it, they have no loyalty. I have been a social worker with the seriously mentally ill for 7 years and have always loved my job. I even loved it up until the minute I left on...