auniecoley
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- Hi everyone,I used to be on here quite a bit, but I haven't been around much this past year so I wanted to check in. I have a vp shunt no paps 2 revisions. I've had awful daily headaches since my revisions (they were 5 days apart), that they...
- My now ex-husband left me literally out of nowhere on a Saturday morning this past November, the week of our 3rd wedding anniversary. Two nights before he asked me what I wanted to do for our anniversary. Needless to say it's been a tough year,...
- Hi Everyone, This may sound like a silly question to some, but others I'm hoping will know exactly what I'm talking about. Can you feel when your shunt is draining? For me with a vp shunt, it's that pain in my lower abdomen on the left side I...
- I may sound crazy to some of you right now, but I'm hoping someone out there has had this happened. Last spring I had all the signs of my vp shunt failing, high pressure head pain, whooshing in my ears etc. On my way to the ER I felt my shunt...
- I think I'm officially at my mental breaking point. I've been told my shunt is working, I am on pretty much every preventive migraine med, and have received botox over a week ago with no relief. My neurologist called me today to tell me that he has...
- A week ago I had my first round of botox injections (31) to treat what my neurologist and neurosurgeon are calling chronic migraines, because according to my shunt my pressure is normal. I have not had any relief yet. I'm also on 400 mg of...
- Hi Eveyone, So my pressure is in normal range thanks to my vp shunt, but I was still suffering with awful headaches which they assume are migraines. They have upped my topamax to 200mg am and pm and Wednesday I began taking 60mg of propranolol...
- Ok I feel like this is going to sound really weird, but I'm questioning double vision. I've always assumed when neurons ask about it they mean I literally see 2 of everything, am I right?? The the other day I realized that with my really bad...
- Hi Everyone,I have a vp shunt and since my last revision October 25th I've been struggling with headaches. I've been working with my neurologist to try to get them under some kind of control. I'm currently on Topamax 150mg morning and night and...
- Hey I know some people have talked about diet, and how it has helped their IH. I have read that people have had success with shakeology with migraines. I was wondering if anyone has tried it? It is vegan and supposedly helps with weight loss. ...
- I'm finding it really hard to be "strong" right now. I'm about 75% sure my vp shunt is failing. Who am I kidding I'm about 90% sure. I'm just biding my time before I make my dreaded trip to the ER to get the CT scan and X-rays and the inevitable...
- OK so I'm going to sound like I'm all over the place so please bare with me. I'm a vp shunter, and I've been put on Topamax to control chronic migraines that I started having after my last vp revision in October. I'm a special education teacher...
- I'm a vp shunter, and I was madly in love with my shunt from April 2012- October 2012. I wasn't on any meds, I felt amazing, I went back to a total normal pre IH life, it was wonderful. Then the headache that changed it all came October...
- I have been working with my neurologist to control my headaches since my second vp shunt revision. He believes I'm having migraines and nerve pain. I've tried amitriptyline up to 150mg and now we have started Topamax. I started at 25 mg at night...
- Hi Everyone,I've been diagnosed with IH for about 2 years. I have a vp shunt, and I've had 2 revisions. I started having headaches after my 2nd revision that I haven't been able to get rid of. I've had drs tell me it could be nerve pain from the...