auniecoley
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- Hi Everyone,I saw a new neuro opth this past Friday, and he was excellent! For anyone who doesn't know I'll give you a short summary of my IH history. -misdiagnosed with migraines for a few months-lp in ER gave IH diagnosis-tried Diamox, Lasix,...
- I'll apologize in advance if this post turns into a venting session. I had two vp shunt revisions within 5 days of each other at the end of October. I was someone who had incredible success with my vp shunt. I felt amazing, and very rarely had...
- I hope you all have a good holiday, whatever you celebrate! I always get so anxious that I won't feel good on Christmas, and that it will be ruined. This year I'm just hoping to feel ok enough to enjoy even just a little bit of the next two days. ...
- I'm probably grasping at straws right now, but who knows! I live in Massachusetts, and New England weather can be very unpredictable. For example it snowed on Saturday, and today, Monday it is over 60 degrees and sunny!! I have noticed that I get...
- Hi Everyone,I have been a member here for a little under 2 years. I won't bore you with my whole story, but I'll give you some key info. I am a severe special education teacher, and absolutely LOVE what I do. I can't imagine not working with my...
- Does anybody have times when it feels like their heart is going to beat right out of their chest? I had this happen in the ER last week and they said it was prob from being in pain, but it's happening pretty regularly now. Just wondering if this...
- I went to the ER yesterday per my NS. So I sat there for hours until they finally did X-rays and a CT. The NS team came down and said they feel my vp shunt is working, but that I could be having headaches from my ventricles being so small??...
- Hi,Just looking to see if there is anyone here from Mass? Maybe we could chat about Drs or vent?Thanks,Nicole
- Hi All,I'm in the ER and the ER dr just took an ultrasound of my eyes. He said that he'll be able to tell if my pressure is high if my optic nerves are swollen on the ultrasound! Anyone ever had this done? I've never experienced this. ...
- Hi All,I got a vp shunt in April of this year. I had a great 6 months, I felt like the old me. Then came October, I got what I thought was a typical pre-period headache, but it was my shunt failing. So I ended up in the ER and having a shunt...
- Hi Everyone.I've been one of the lucky ones that has been feeling really good since having a vp shunt placed in April. I still have occasional headaches, but Ive returned to having quality in my life, and even back to teaching. Unfortunately I've...
- Hi Everyone, I'm not trying to jump the gun on this, but I was wondering if anyone has been in this situation. I was diagnosed with this lovely disease about 2 months after I got married. Needless to say it has changed my life plan just a "little...
- Hi Everyone,I had a vp shunt placed a week ago tomorrow. I've been recovering exceptionally well, until I yesterday when I got a pain under my right ribcage, above my incision. Yesterday it felt almost like a cramp, but today it is a stabbing...
- I will be meeting with a neurosurgeon hopefully within a week or two. I've been referred for a vp shunt. For any of you that have shunts are you able to stop taking Diamox, Lasix, etc? On top of the medicine not working anymore, I absolutely...
- I apologize in advance for sounding like Debbie Downer, but I'm having a tough few days. I'm starting to have fewer and fewer good days now. I was on a bit of a roll a few months ago actually making it about 2-3 months with weekly or biweekly...