auniecoley
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- Sorry for my earlier post hit enter by accident...ooops!Yesterday I went to see a neurologist for a 2nd opinion, not so much for my IH diagnosis, but more for the treatment of it. I went to a reputable neuro, at a great hospital in Boston. We went...
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- I haven't been on here in a while, but I could really use any advice or input anyone can offer. I've had IH for just about a year now. My Diamox has been increased 3 times within that year, and the addition of Lasix and Amitryptiline. I have...
- Hi Everyone,I'm back to teaching full time, and haven't been very good at keeping in touch on here, but my IH is always there to remind me of this amazing group of people. So I've been back into the full swing of school, and dealing the best I can,...
- Hi Everyone,I was diagnosed with IIH this past March after suffering without a diagnosis for a long time. I couldn't return to my job, as a special education teacher, from mid Feb-current. I'm heading back to school later this week, and I'm a bit...
- I have been on a really good stretch the past few months with very few headaches. I'm still on Diamox and Lasix. We are expecting a hurricane here between tomorrow night and Sunday, and my head is throbbing. It started about two days ago, it...
- Hi Everyone,I had to cancel my honeymoon to Italy due to my diagnosis of IH in March. We were supposed to go to Italy for a once in a lifetime trip, but with my headaches making it difficult for me to even function we canceled. Over the past few...
- I apologize in advance if I sound like Debbie Downer. I've had two amazing weeks with only about 6 completely manageable HA's. This was a record for me since I was diagnosed. I even started to drive again (just locally, but I was so excited). I...
- Hi Everyone,So I went to see my Neur Op last week for what I thought was a Pap, and floaters. I was told I don't have any paps to which he questioned if I have IIH??? He did however find a hole in the retina of my right eye and the start of one in...
- I'm starting to lose my mind..I used to put slowly in front of that, but it's official I'm losing it! I saw my nuero op today for what I thought were Paps, but low and behold no Paps, but my retina has a whole in it! Great I'll just add that to...
- I'll start by saying I'm having a tough week, so I'm sorry if I sound whiny. I've been trying like hell, even going to Acupuncture twice a week to get some sort of quality of life back. I've been feeling ok, but have been noticing a lot of...
- So I was diagnosed with PTC/IIH in March saw a neuro opth immediately and had no Paps. Had the high pressure and the taps, put on Diamox, Lasix, Amiltryptiline. I've been noticing that I have "floaters" in my vision for a few weeks, but I also now...
- Hi Everyone,I've been going to acupuncture to help with my PTC. I absolutely love the woman I go to and she has helped me with a variety of supplements and ideas. Today before my treatment she told me that she had been at this conference for Lyme...
- Just wondering if anyone was from Mass.? Would love to know someone else in the area who would love to throw ideas or support back and forth.Thanks,Nicole
- Has anyone ever taken Fioricet to help with pain? I have this med prescribed for migraines, but they told me to try it with PTC headache. Anyone ever have any luck? My neuro is so paranoid about rebound headaches he doesn't even want me taking...